Post surgery for typical carcinoid: Very tired and low energy

@jessie1990
Hi Jess. I personally have no idea. I was hoping someone would respond that might know.

@tomrennie hi tom how are you? I'm just totally wiped of energy last 3 weeks don't no what's going on

I would think you are still recovering you went through a lot! Low B-12 and folic acid could contribute however I would be reaching out to your Doctors for advice. I had major surgery 4-1/2 years ago that’s when my Pnets were found then going into the few treatments I’ve had and the monthly shot and the daily meds I’m still tired a lot! Good luck give yourself a little more time.

@kevinmonroemi hi Kevin hope you are well ive went to my gp 2 weeks ago they done full blood count every thing was fine but my b12 levels are at 95 normal level is 130 and my folic acid is below average also I've received 1 shot of b12 last week I'm on 3 more shots one a week then tablets so I'm hoping this helps soon

Hi again, Jess. Glad you’re getting the B12 shots and telling your doctor about your fatigue. Hopefully this is part of your body adjusting to the loss of lobe and the healing process, and you will improve naturally as time goes on. Three weeks is still early in recovery and healing, especially when you have open surgery, which I believe you had, compared to robotic.

@jhhaas hi 😊I'm 11 weeks post op I've had open surgery I've had 2 lobes removed it's a bilobectomy is what I had done I'm feeling really low on energy and really tired about 3 weeks now so I'm hoping it's the low b12 normal levels are 130 mine is 95

@jessie1990: Fatigue is difficult to explain to others, and therefore some might reply, “oh yeah, who isn’t tired!”. Your endurance will improve over time and tumor control, but it is our body reminding you that your body is fighting a war. You may find it helpful to cut back on your regular schedule to allow more time for rest periods during each day. Family, neighbors, friends are usually willing to help you. We are here and may have a suggestion that will help you feel stronger.

@dbamos1945 thank you yes I need to take more rest breaks I've 3 kids so they keep me busy between school runs house work i get really tired then my energy is gone also I have my second shot of b12 today hoping when my levels go back to normal I feel abit better if I could sleep my life away I would 😊

No idea. It’s been 3 years since two of my lines were removed for typical carcinoid tumors. I still have some but I am now on Ct scan schedule of once a year. I am leading a normal life but
huff and puff some after climbing stairs
Wishing you hugs and
luck in this process

Not lines. Lobes. I hate spell correct