Neuroendocrine Tumors (NETs): Discussions | Page 3

I was diagnosed with a pnet metastasized to my liver and bones in 8/22. It was...

https://connect.mayoclinic.org/comment/1350623/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 7:49pm

PNEt. Had capTem, lanreotide, everolimus, prrt, CapeOx and now Keytruda. Been going strong for 6.5 yrs...

https://connect.mayoclinic.org/comment/1307403/

Discussion: Keytruda for neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 6:34am

I have pNET with liver metastases. I had leg swelling after my first CAPTEM treatment. It...

https://connect.mayoclinic.org/comment/883873/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

I'm so sorry you have to go through this and understand your fear. The waiting is...

https://connect.mayoclinic.org/comment/1398686/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22 9:39am

I have pNET grade stage4 with liver metastases. I have not noticed any swelling. I am...

https://connect.mayoclinic.org/comment/883583/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Me. 2 yrs. PNET with liver mets, stage 4. Also endometrial cancer There is a good...

https://connect.mayoclinic.org/comment/1225138/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30 6:13am

I have a NET but what’s a pNET? I have liver metastasis too. Could you tell...

https://connect.mayoclinic.org/comment/1071566/

Discussion: pNET with liver metastases: What is necrosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

I am a textbook stage 4 pNET person for CAPTEM. After 12 monthly cycles, it is...

https://connect.mayoclinic.org/comment/916650/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

I have Grade 2 Stage 4 pNET ( due toliver metastases) and am currently on Lanreotide...

https://connect.mayoclinic.org/comment/900598/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2023

Cabometyx (or cabozantinib) has been around since about 2010, recently approved for well-differentiated pNET and epNETs....

https://connect.mayoclinic.org/comment/1356064/

Discussion: New approved drug for pNETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25 11:08am

My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...

https://connect.mayoclinic.org/comment/875710/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

Agree with all that has been said. Many advances in understanding this cancer. Be sure to...

https://connect.mayoclinic.org/comment/1303035/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 6:54am

So did you have surgery? My pNET is about that size (8x6) but I have been...

https://connect.mayoclinic.org/comment/951773/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Follow up with pnet specialist inquire about pet scan specific to neuroendocrine tumors. Where are you...

https://connect.mayoclinic.org/comment/1273110/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3 8:15am

As a PNet surgical success story I send hope to all. The team at Mayo is...

https://connect.mayoclinic.org/comment/1315749/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 29 12:08pm

Thank you Lindabees! Our emotions are all over the place right now. I hope there is...

https://connect.mayoclinic.org/comment/1206203/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 3:26pm

My hematologist is the one who diagnosed my PNET due to extremely low platelet count. She...

https://connect.mayoclinic.org/comment/1049783/

Discussion: Anyone had a trend of their platelets going too low? What action?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2024

Hi @rginvictus, I add my welcome along with @stevm and @jolo24. I added your question to...

https://connect.mayoclinic.org/comment/1035921/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

I have a 1.7cm Pnet that was found on tail about 4 months ago. At this...

https://connect.mayoclinic.org/comment/903839/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2023

My CgA is extremely high however my oncologist and gastrointestinal doctors are not concerned. Reason- there...

https://connect.mayoclinic.org/comment/1345098/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 10:43am

Neuroendocrine Tumors (NETs) Support Group