Neuroendocrine Tumors (NETs) Support Group

Presented to ER with shortness of breath, chest pain and severe pain to both legs. Incidentally found pancreatic Neuroendocrine tumor. Ct/MRI done and surgeon confirms...

My partner (grade 2, stage 4 PNET) has an unrelated tooth implant to do & that involves mixing bone & blood to build up the...

Hello everyone, I have surgery coming at the end of this month for a PNET on my pancreas. Dr’s will be performing spleenectomy and distal...

I found out there is a 8mm pNET at the tail in the beginning of September. The Ga68 PET scan is negative. My appointment with...

Hi! During a stroke work up a CT scan on my chest discovered a 16 cm mass in my abdomen. Multiple MRI, CT, PET (Gadolinium)...

I had a distal pancreatomy with splenectomy on March 10th for NET in pancreas. All was well. Good recovery. Went on Monday for my 6months...

Started Everolimus for pancreatic Neuroendocrine cancer with Mets to liver and bone diagnosed four years ago. Was 49 when diagnosed. Had TACEx4, IV radiation(PRRT) x4,...

Hi,I was diagnosed with Pnet grade 2 level 4 in February. I had my first pet scan last Wednesday but haven't been able to talk...

Hello everyone, yesterday on February 24,2023 I underwent a distal pancrectomy and a spleenectomy. I am am posting this comment from my hospital room. I...

The Seena Magowitz Foundation for pancreatic cancer patient advocacy has announced a newly created monthly support group for Pancreatic Neuroendocrine Tumors. The Zoom meeting is...