Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
I just discovered this NETS support group and happy to be here. I am recently diagnosed with NETS in small bowel which was misdiagnosed as enlarged lymph node or kidney stones at local hospital. I have since had biopsy, pet scan and MRI, CT to confirm diagnosis and pathology has it as grade 1-2 with lymph node involvement & primary tumor located but at time of biopsy, they didn't know it existed. I am scheduled for Laparoscopic Possible open surgery for small bowel resection and mesenteric mass resection in one week from today. I am concerned that the hospital in my network does not do these types of surgeries on the regular and after reading many of the posts I am questioning everything. I am unfortunately not in network with Mayo in Jacksonville and my network does not include any providers that have a Multidisciplinary Team dedicated to NETS. Any thoughts appreciated on how I can move forward out of being frozen with fear that I'm making huge mistake going forward to this surgery.