Neuroendocrine Tumors (NETs) Support Group

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Comments (721)

Hello I too have a NET tumor on my left lung that has metastasized to my...

https://connect.mayoclinic.org/comment/955119/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2023

@dzerfas Hello and welcome to Mayo Connect. We would enjoy getting to know you better. If...

https://connect.mayoclinic.org/comment/134261/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2017

I just want to give an update since I had Prenuvo Scan October 14. That scan...

https://connect.mayoclinic.org/comment/978444/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2023

I became aware of the nodule in February 2023 after CT scan due to COVID .I...

https://connect.mayoclinic.org/comment/831626/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

@aliatl Yes they gived same all three medicines, 6 times x 3 days. After 2. chemotherapy...

https://connect.mayoclinic.org/comment/823442/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2023

I have Malignant Neuroendocrine Tumors of the Lung and have been in treatment with Sandostatin LAR...

https://connect.mayoclinic.org/comment/969442/

Discussion: Octreotide Injections - Skipping One or More?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2023

Thank you so much! This is a beautifully curated discussion group. This was discovered 5 months...

https://connect.mayoclinic.org/comment/799429/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2023

Just recently went to Mayo for continued evaluation. The Oncologist there agreed that my symptoms were...

https://connect.mayoclinic.org/comment/271254/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2019

I had just recovered from my mastectomies and was pulling myself back together when my husband...

https://connect.mayoclinic.org/comment/232724/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hi, I had two very small typical carcinoids removed Nov. 21 They took my entire lower...

https://connect.mayoclinic.org/comment/989821/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 1, 2024

@nana120 I wasn't told of any dietary restrictions when I started my octreotide injections, but maybe...

https://connect.mayoclinic.org/comment/937831/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...

https://connect.mayoclinic.org/comment/885633/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

@annie12345 That’s hard when cost becomes the driver. Yes, I’m lucky I’ve always had great insurance...

https://connect.mayoclinic.org/comment/1330889/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 8:59pm

Thanks for the reminder to fill you in. I did ask my IR who did my...

https://connect.mayoclinic.org/comment/957412/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Hi I was diagnosed a year ago with NET. It showed up with multiple lesions in...

https://connect.mayoclinic.org/comment/854586/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Sakota- Here is a link to a great explanation to your question. It also show a...

https://connect.mayoclinic.org/comment/232792/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 14, 2018

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

While my tumors have been located and biopsies and I’m on my seventh injection of Lanreotide...

https://connect.mayoclinic.org/comment/933719/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2023

@gprior Hi Gloria. Sorry you have a tumor by your heart and need more surgery. No,...

https://connect.mayoclinic.org/comment/1142729/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

mir123 I was advised by thesecondopinion.org to be treated for my NET of the breast with...

https://connect.mayoclinic.org/comment/945761/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 11, 2023

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