Neuroendocrine Tumors (NETs): Discussions | Page 20

I met a lady through a NETs organization who told me she had a lung lobe...

https://connect.mayoclinic.org/comment/963377/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2023

Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by...

https://connect.mayoclinic.org/comment/1288532/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 10:55pm

I was diagnosed with a .4c rectal carcinoid in 2000 and a recurrence in 2010. Four...

https://connect.mayoclinic.org/comment/134276/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

My son is feeling great. He was seen at Mayo this past Monday. They did a...

https://connect.mayoclinic.org/comment/225836/

Discussion: My son's neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2019

Please see questions in string below. I think some may have ventured off and begun answering...

https://connect.mayoclinic.org/comment/1316236/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 30 6:44am

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

Wow, glad they found them. I, also, had a few other tumors in the lobe they...

https://connect.mayoclinic.org/comment/976769/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2023

I’m tired. No cancer diagnosis. Lots of cancer in my family… mom, aunt, grandma and my...

https://connect.mayoclinic.org/comment/882282/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Hello @larenn and welcome to Mayo Connect. It sounds as if you have a rather complex...

https://connect.mayoclinic.org/comment/793773/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

Hello @coco1, I see that @char1962 has already connected with you. I would like to join...

https://connect.mayoclinic.org/comment/748313/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 11, 2022

Thank you Colleen for posting, this is a great initiative. I, like JoAnn am also retired...

https://connect.mayoclinic.org/comment/949715/

Discussion: Calling all Firefighters: The National Firefighter Registry for Cancer

Support Group: Cancer

Posted: Oct 18, 2023

Welcome, @sandip. I moved your message to this existing discussion: - Neuroendocrine tumor in small bowel...

https://connect.mayoclinic.org/comment/873174/

Discussion: Neuroendocrine tumor in small bowel with lymph nodes involved

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

@ekri, good to hear that the surgery was able to have clear margins. You're asking good...

https://connect.mayoclinic.org/comment/1013386/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2024

Just had my scan at the Mayo Clinic was also nervous (my cancer is terminal) as...

https://connect.mayoclinic.org/comment/233030/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 1, 2019

@alamogal635 - I'm with you on the guilt and shame. In my blog I go into...

https://connect.mayoclinic.org/comment/232935/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 5, 2019

Thank you very much for your post. I've been dealing with lung nodules cropping up since...

https://connect.mayoclinic.org/comment/1206060/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7 12:07pm

I have a question. I was diagnosed about year and half ago with small MCC lesion...

https://connect.mayoclinic.org/comment/1312210/

Discussion: Merkel Cell Carcinoma: Immunotherapy while on antirejection meds

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 1:34am

I have GERD too. Before my DIPNECH and lung NETs was diagnosed even though we knew...

https://connect.mayoclinic.org/comment/1329913/

Discussion: DIPNCEH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 12:24pm

Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...

https://connect.mayoclinic.org/comment/882190/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that...

https://connect.mayoclinic.org/comment/1022080/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

Neuroendocrine Tumors (NETs) Support Group