Neuroendocrine Tumors (NETs) Support Group

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Comments (721)

@hopeful33250 Thanks for the reply! I guess the Pulmonologist at Mayo presented my case at the...

https://connect.mayoclinic.org/comment/271271/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2020

Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...

https://connect.mayoclinic.org/comment/906758/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...

https://connect.mayoclinic.org/comment/842248/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

Thanks. The reason that they aren’t removing them without a biopsy is that if they are...

https://connect.mayoclinic.org/comment/232959/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 7, 2019

Hello- I have a carcinoid nodule in my lower left lobe it measures 2.3 cm by...

https://connect.mayoclinic.org/comment/1076510/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2024

Hello @ocean3131 and welcome to the NETs support group on Mayo Connect. I'm sorry to hear...

https://connect.mayoclinic.org/comment/987604/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2023

I was recently diagnosed (this week) with a Neuroendocrine Tumor in my lower lung and one...

https://connect.mayoclinic.org/comment/806203/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

I'm on the path to getting the help. Lung biopsy and pancreatic biopsy. Will have more...

https://connect.mayoclinic.org/comment/979680/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Hello @gmapam and welcome to the NETs support group on Mayo Connect. As @californiazebra said, it...

https://connect.mayoclinic.org/comment/884254/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

I also have multifocal adenocarcinoma , was diagnosed in 2011 at mayo. Have had two surgeries...

https://connect.mayoclinic.org/comment/233083/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 20, 2019

i’ve done “watch and wait” for numerous “growth” conditions on internal organs. i’ve been fortunate that...

https://connect.mayoclinic.org/comment/1067016/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2024

@jeanadair- Good morning. I am so glad that you wrote back. It's quite something, isn't it...

https://connect.mayoclinic.org/comment/232709/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello, I was diagnosed a year ago with NET in my left lung. I had surgery...

https://connect.mayoclinic.org/comment/1231241/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 6:31am

I was diagnosed with this rare condition 6 years ago . I had a persistent cough...

https://connect.mayoclinic.org/comment/775955/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

@merpreb Thank you for the above response. It does help. I am learning to take things...

https://connect.mayoclinic.org/comment/232933/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 4, 2019

Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...

https://connect.mayoclinic.org/comment/861009/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Thank you yes I don't drink much at all just if I go out for a...

https://connect.mayoclinic.org/comment/1330028/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18 3:11pm

Hello Well it’s getting close to surgery time 12/26 7:00am. Twenty three years to the day...

https://connect.mayoclinic.org/comment/985519/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

@gprior Thank you for the response. You’ve been through a lot. I’m sorry to hear of...

https://connect.mayoclinic.org/comment/1224889/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 3:56pm

No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in...

https://connect.mayoclinic.org/comment/1198235/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

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