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Comments (240)
Wow hats off to you on your journey what an experience you learned from and handled...
https://connect.mayoclinic.org/comment/821372/
@mhcohan Yes, I had a 26 mm lung NET destroyed with microwave ablation 4 years ago....
https://connect.mayoclinic.org/comment/1415806/
Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
https://connect.mayoclinic.org/comment/1162740/
@californiazebra Thank you so much for all that information. I looked up DIPNECH as soon as...
https://connect.mayoclinic.org/comment/1432510/
Hello @jan355 and welcome to Mayo Connect. I see that @californiazebra has already posted with you....
https://connect.mayoclinic.org/comment/1221355/
Mine was found incidentally on a coronary CT, then pet scan showed malignancy in RML, along...
https://connect.mayoclinic.org/comment/1205379/
@jhhaas I’m curious. You listed a lot of symptoms but said you haven’t needed treatment shots...
https://connect.mayoclinic.org/comment/1205397/
Hi, your story sounds like mine. I had right middle lobe removed October 2023 due to...
https://connect.mayoclinic.org/comment/1329790/
@cmc188 I don't blame you for not wanting side effects without any benefit. I have had...
https://connect.mayoclinic.org/comment/1206123/
Hi @blm1024 Welcome! Glad you’re in the other side of surgery. I have typical lung carcinoids...
https://connect.mayoclinic.org/comment/1350349/
@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...
https://connect.mayoclinic.org/comment/861413/
@tomrennie I thought it was you 🙂 This is going to be a bit long. Sorry...
https://connect.mayoclinic.org/comment/1454845/
Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...
https://connect.mayoclinic.org/comment/842248/
@annie12345 After you read thru all the posts, let me know what questions you still have....
https://connect.mayoclinic.org/comment/1329039/
Hi! I was recently… finally diagnosed with DIPNECH. I am 69 and probably have had this...
https://connect.mayoclinic.org/comment/1173598/
@kdubbs Welcome to the DIPNECH family as it’s rare. I have both DIPNECH and lung NETs...
https://connect.mayoclinic.org/comment/1391732/
Hello @oilyproudnana and welcome. It looks like your biopsy confirmed lung NETs. Is that correct? I...
https://connect.mayoclinic.org/comment/1392531/
Were your tumors malignant which were destroyed with microwave ablation? The one I am scheduled to...
https://connect.mayoclinic.org/comment/1208651/
Hi - NETs are neuroendocrine tumors, formerly called carcinoid tumors. They are either “typical” or “atypical”-...
https://connect.mayoclinic.org/comment/1205644/
@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...
https://connect.mayoclinic.org/comment/1181820/
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