Neuroendocrine Tumors (NETs) Support Group

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Comments (260)

@laree I have carcinoid lung cancer. Are you speaking of pancreatic cancer? It gets confusing in...

https://connect.mayoclinic.org/comment/1541353/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 3:18pm

@nannybb oh my word!!!! I am sending love during this difficult period. I do not know...

https://connect.mayoclinic.org/comment/1438650/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...

https://connect.mayoclinic.org/comment/838553/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Hi @shella, I wanted to make sure you saw the helpful post from @merpreb. I have...

https://connect.mayoclinic.org/comment/815207/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

Hi, I am 76 and have typical 19 mm carcinoid lung net they want to do...

https://connect.mayoclinic.org/comment/1522926/

Discussion: Post surgery for typical carcinoid: Very tired and low energy

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9 4:32am

Good morning 3 years ago I had an Adenocarcinoma tumor removed from my right upper lobe....

https://connect.mayoclinic.org/comment/1438478/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2025

I had an ademocarinoma tumor removed from my top right lobe and at the same time...

https://connect.mayoclinic.org/comment/1427225/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2025

@azrosegold Yes, I’m being seen at a university hospital. Most university hospitals and major cancer centers...

https://connect.mayoclinic.org/comment/1558853/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 8 hours ago

@myboys02 Sorry to hear about your diagnosis, but so glad you have a diagnosis because DIPNECH...

https://connect.mayoclinic.org/comment/1554737/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

@lisaonthegoco I'm so sorry that you've had to deal with this for so long and told...

https://connect.mayoclinic.org/comment/1556870/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

Hi . I have had long nodules for about 8yrs that started growing. Afrrr cat scan,...

https://connect.mayoclinic.org/comment/1553869/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

I’m 65 and was diagnosed with DIPNECH last summer after a tumor was found on my...

https://connect.mayoclinic.org/comment/1555965/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

I also have dipnech , several carcinoid tumors on my lung. I had robotic surgery almost...

https://connect.mayoclinic.org/comment/1540063/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1 5:21am

@myboys02 So glad to hear you are going for a second opinion at Sloan Kettering. Smart...

https://connect.mayoclinic.org/comment/1554907/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: 5 days ago

@anasashesh87 I am only speaking from personal experience. cancer. Long before anything turned up on scans,...

https://connect.mayoclinic.org/comment/1496371/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 12:06pm

@hopeful33250 oh sorry thought it was lung carcinoids do you still get regular scans

https://connect.mayoclinic.org/comment/1500826/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 10:49am

@jessie1990 I do not have lung carcinoids, but my carcinoids were in the digestive tract. My...

https://connect.mayoclinic.org/comment/1500718/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 8:15am

@tomrennie is lung carcinoids easier to treat then GI carcinoids

https://connect.mayoclinic.org/comment/1530339/

Discussion: What's the difference between typical lung carcinoids and GI?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19 3:33am

@kdubbs Also, you do have Emory University and Winship Cancer Institute there. Because DIPNECH is rare...

https://connect.mayoclinic.org/comment/1532932/

Discussion: DIPNECH dr in GA- Atlanta

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 1:52pm

@stephanieann Though I have not had any surgeries for NETs, I have had a fair amount...

https://connect.mayoclinic.org/comment/1528052/

Discussion: Previous heart surgery & risks of surgery to remove lung net

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 8:37am

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