Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

296 total results

Comments (268)

@nana120 So they didn’t remove your lung NET? Or had it already metastasized when first discovered?

https://connect.mayoclinic.org/comment/939523/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

I do. I had a lung net removed In April. Best guy at Mayo is dr...

https://connect.mayoclinic.org/comment/771380/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

@pammy229 I appreciate the added information on your recent lung NET diagnosis. I'll invite some other...

https://connect.mayoclinic.org/comment/1198262/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

yes they are just reference Dt. Willin and net team and their patient caregiver presentations are...

https://connect.mayoclinic.org/comment/673631/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2022

@breck, Here is a discussion group on Connect that you might find helpful. Here you will...

https://connect.mayoclinic.org/comment/1169616/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

@pammy229 Hello Pamela and welcome to the NETs support group on Mayo Connect. This is a...

https://connect.mayoclinic.org/comment/1198172/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Hello @amd12 You mentioned in your last post that you would be having another scan to...

https://connect.mayoclinic.org/comment/792439/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2023

Hi @amd12, welcome. You've certainly come to the right place. I can imagine that you are...

https://connect.mayoclinic.org/comment/657244/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2021

Just FYI, my NETs in my liver that is the largest tumor is metastatic from my...

https://connect.mayoclinic.org/comment/939449/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Hello @woundedwarrior1969 and welcome to the NETs support group on Mayo Connect. I'm pleased that your...

https://connect.mayoclinic.org/comment/911926/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

Ben, I read your post with interest. I was diagnosed with an inactive, "indolent" lung NET...

https://connect.mayoclinic.org/comment/782212/

Discussion: Pancreatic NF-NET stable since 2005 - surgery or not?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2022

Diagnosed 1/27/23 lung NET Bronchoscope on 1/24/23 results on 1/26/23 lymph nodes chest ok but nodule...

https://connect.mayoclinic.org/comment/803360/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

I too am Atypical lung net. It has spread to liver and several vertebrae in my...

https://connect.mayoclinic.org/comment/939666/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2023

I have a lung NET and My flushing was immediate and only lasted a minute or...

https://connect.mayoclinic.org/comment/1056779/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2024

Hello @gmapam and welcome to the NETs support group on Mayo Connect. As @californiazebra said, it...

https://connect.mayoclinic.org/comment/884254/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Yes, I'm also glad the surgeon you saw is so experienced with NET lung tumors. Experience...

https://connect.mayoclinic.org/comment/913585/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Has anyone with Lung NETS suffer from pain through to back under shoulder blades? Can only...

https://connect.mayoclinic.org/comment/1057873/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26, 2024

In reply to Blue Dane: I was very recenty diagnosed with 1 NET in my liver...

https://connect.mayoclinic.org/comment/813633/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

Thank you, and yes, I will try to update. I am not near Mayo, but I...

https://connect.mayoclinic.org/comment/1108927/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

I have a Lung Net that is well defined, grade one. It is in my middle...

https://connect.mayoclinic.org/comment/941988/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

Follow

7228

41 minutes ago

Digestive Health

Follow

13190

3 hours ago

Follow

5734

4 hours ago

Follow

1281

5 hours ago

Pancreatic Cancer

Follow

2366

6 hours ago