Lung Cancer Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

283 total results

Comments (263)

@yorkie67 this presentation from Dr Janne at Dana Farber is about a year old, but he...

https://connect.mayoclinic.org/comment/1420302/

Discussion: Does anyone have info on new treatments against EGFR exon 19 mutation?

Support Group: Lung Cancer

Posted: Oct 21, 2025

Waiting for results; should know something by end of next week. I have an appointment on...

https://connect.mayoclinic.org/comment/942051/

Discussion: Anyone in this group been on Tagrisso and have it stop working?

Support Group: Lung Cancer

Posted: Oct 4, 2023

I have been on Tagrisso 7 months and developed some lung tightness. My doctor has no...

https://connect.mayoclinic.org/comment/1223663/

Discussion: Anyone taking Tagrisso for Lung Cancer?

Support Group: Lung Cancer

Posted: Jan 28, 2025

I am having targeted brain radiation, then chemo, then a clinical trial that targets my EGFR...

https://connect.mayoclinic.org/comment/140632/

Discussion: Living with lung cancer - Introduce yourself & come say hi

Support Group: Lung Cancer

Posted: Feb 26, 2018

Hello, yes I was sent to genetics. My EGFr 19 t790 was passed down to me....

https://connect.mayoclinic.org/comment/1278910/

Discussion: Just scared: Cancer and scared leaving my daughter behind

Support Group: Lung Cancer

Posted: Apr 10, 2025

Hi @gavinmyers13, Have you seen this recent discussion from other EGFR patients too? https://connect.mayoclinic.org/discussion/newly-diagnosed-lung-cancer-egfr-mutation-stage4/?pg=2 Most of...

https://connect.mayoclinic.org/comment/858573/

Discussion: Has anyone taken the targeted therapy osimertinib (Tagrisso)?

Support Group: Lung Cancer

Posted: May 12, 2023

Talk to the doctors about a dose reduction in her tagrisso first. Dose reductions have made...

https://connect.mayoclinic.org/comment/1099663/

Discussion: Anyone experience GI side effects with Tagrisso for lung cancer?

Support Group: Lung Cancer

Posted: Jul 5, 2024

I am new to this, are there genetic types that are favorable in terms of proven...

https://connect.mayoclinic.org/comment/1343533/

Discussion: Stage 4 likely - what are the treatment options if surgery is not one?

Support Group: Lung Cancer

Posted: Jul 8, 2025

Hi. Yes, biomarkers were tested. My tumor came back EGFR positive. It also came back PDL1...

https://connect.mayoclinic.org/comment/856528/

Discussion: Stage 1B Adenocarcenoma NSCLC: Odds of recurrence?

Support Group: Lung Cancer

Posted: May 8, 2023

@kakalena My dr has recommended Carboplatin + pemetrexed + pembrolizumab. Has anyone else used this combo...

https://connect.mayoclinic.org/comment/1351926/

Discussion: Stage 4 likely - what are the treatment options if surgery is not one?

Support Group: Lung Cancer

Posted: Jul 19, 2025

@lala56 thank you for this information. I am having complications from lobectomy pleural effusion due to...

https://connect.mayoclinic.org/comment/1488192/

Discussion: What can I expect with Cisplatin + Pemetrexed chemo?

Support Group: Lung Cancer

Posted: Jan 21 1:56pm

@hch559 , Thanks for sharing this update. I'm glad you had the NGS testing completed and...

https://connect.mayoclinic.org/comment/1264220/

Discussion: Just diagnosed with 1.2 cm lung nodule

Support Group: Lung Cancer

Posted: Mar 22, 2025

Results from the FLAURA2 trial have come out this year and the results provide "compelling evidence...

https://connect.mayoclinic.org/comment/965640/

Discussion: Chemo before Tagrisso or not? Need info but where do I start?

Support Group: Lung Cancer

Posted: Nov 16, 2023

O yes....I am in 4th stage CKD. eGFR usually runs 26 -31. Sorry if I'm being...

https://connect.mayoclinic.org/comment/920532/

Discussion: Lung Cancer EGFR Mutation Stage 4: What treatments did you have?

Support Group: Lung Cancer

Posted: Aug 28, 2023

Make sure you get genetic testing on the tumor to see if you have a mutation...

https://connect.mayoclinic.org/comment/756600/

Discussion: Newly diagnosed with lung cancer. Never smoked. In shock....

Support Group: Lung Cancer

Posted: Oct 3, 2022

@franciekid , I'm so sorry to read this, but glad that you seem to be having...

https://connect.mayoclinic.org/comment/1239364/

Discussion: Has anyone on Tagrisso had brain mets show up?

Support Group: Lung Cancer

Posted: Feb 17, 2025

@jill757, Lisa mentioned most of the things I was going to say. I'm always in favor...

https://connect.mayoclinic.org/comment/1109366/

Discussion: EFRG variant stage 1A lung cancer: What treatment did you have?

Support Group: Lung Cancer

Posted: Jul 21, 2024

Glad you are doing well on the chemo. I have stage 4 EGFR with mutations since...

https://connect.mayoclinic.org/comment/645959/

Discussion: Anyone out there living with stage 4 lung cancer?

Support Group: Lung Cancer

Posted: Oct 18, 2021

A spiculated nodule found by accident was my first sign of EGFR non small cell lung...

https://connect.mayoclinic.org/comment/1315200/

Discussion: Spiculated nodule

Support Group: Lung Cancer

Posted: May 28, 2025

I have also joined the lung cancer n egfr resisters group. N am so glad to...

https://connect.mayoclinic.org/comment/1038240/

Discussion: Immunotherapy: How many lung cancer patients are 5 yrs post diagnosis?

Support Group: Lung Cancer

Posted: Mar 22, 2024