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Liver Cancer Support Group

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Cholangiocarcinoma and proton and photon beam radiation
Recently diagnosed with bile duct cancer or cholangiocarcinoma. I have been reading up on alternative treatment. Is Photom Beam Therapy right for me? Has anybody...
Support Group: Liver Cancer
Last active: Dec 21, 2023
Discussion
Diagnosed with cholangiocarcinoma, can this be treated?
Father in law is diagnosed with this and surgery could happen. But seems like chemo is not ending, even oral chemo is happening. Lot of...
Support Group: Liver Cancer
Last active: Apr 26, 2025
Discussion
Cholangiocarcinoma: Dealing with husband's long stay in ICU
My husband diagnosed 12/22/24. Had the following surgery on 03/03/25:1) Diagnostic laparoscopy2) Exploratory laparotomy3) Cholecystectomy4) Extended R hepatectomy5) En-bloc resection of extrahepatic biliary tree6) En-bloc...
Support Group: Liver Cancer
Last active: Jun 8, 2025
Discussion
Cholangiocarcinoma - Mayo Clinic Rochester. Are there other patients?
I was diagnosed in the last few days with cholangiocarcinoma of the liver and I do not fit the protocol of treatments + transplantation. I...
Support Group: Liver Cancer
Last active: May 26 3:36pm
Discussion
Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~
Support Group: Liver Cancer
Last active: Sep 29, 2025
Discussion
Has anyone had surgery for intrahepatic cholangiocarcinoma?
In my case, the tumor has decreased to 2cm x 3cm. Anyone who has had surgery for this would love to hear as I’m meeting...
Support Group: Liver Cancer
Last active: May 22, 2025
Discussion
Husband recently diagnosed with Cholangiocarcinoma and had no symptoms
My husband was recently diagnosed with Cholangiocarcinoma. We were referred to Mayo and have our first appointment in a week. What I don't understand is...
Support Group: Liver Cancer
Last active: May 26 3:30pm
Discussion
Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.
Support Group: Liver Cancer
Last active: Apr 30 10:47am
Discussion
Ventral Incisional Hernia Repair
18 months after successful radical bile duct resection and reattachment at Mayo Rochester for distal cholangiocarcinoma, I developed a ventral incisional hernia that required robotic-assisted...
Support Group: Liver Cancer
Last active: Jun 25 10:00am
Discussion
Intrahepatic Cholangio, Stage 1 but with R1 positive margin
Hello, I’m looking to connect with anyone who had Stage I intrahepatic cholangiocarcinoma and surgery that resulted in a positive (R1) margin. • What treatment...
Support Group: Liver Cancer
Last active: Sep 29, 2025