Infectious Diseases Support Group

Hi, My son (17) just got diagnosed with reactive / chronic EBV he is an athlete with dreams of playing in college. He is really...

Following my first bout of COVID in September of ‘24 I have been suffering from what I thought were Long Covid symptoms (brain fog, nerve...

I've had CAEBV for a few years and have flare ups that last about 2 weeks or so each time. Fatigue is everyday though. This...

I was first diagnosed with EBV in 2017. It took a while to get my doctor to test for mono, as they suggested my fatigue...

I'm wondering if anyone has had luck going to the Mayo Clinic. I have been battling life-changing, wicked fatigue for 2 years. Before it hit,...

I was just told I tested positive for all Epstein Barr Virus tests, except for the one that says you were recently infected. I was...

Has anyone had mouth sores with reactivation of EBV and did you find anything to help it?

This may not be related to my condition. Has anyone seen these bumps before? If so, what was it? They don’t itch nor do they...

Hi, I’m 25 and got diagnosed with mono about 8 months ago. I have multiple lymph nodes in my neck that are enlarged and throbbing....

Hello, Has anyone has EBV hepatitis? I am 33 yr old woman that had mono for 10 months in 2022. I was diagnosed with chronic...

Hello! I am a 44 year old male and have recently been hit hard with neurological symptoms that I am wondering have been caused by...

Hi, Im going to be doing some traveling that I cant get out of.Any advice or tips anyone could offer would be appreciated. Ill be...

PCP tested me 1.5 years ago because she said I always looked tired. All EBV antibody titers positive. Have repeated tests multiple times and always...

I have been struggling with EBV since I was 20. I have had some long lived flare ups but have had some good recovery years...

Mid April I had testing done for Vertigo. I could not complete the testing and nearly vomited. Ruled out inner ear, seeing a Neuro to...

I'm 44 yrs old. Over the years, drs tested me for ANA and sjogrens. 7 out of 10 times it was positive. Said probably lupus....

Good Afternoon for all of you Since 2016 I’ve got reactived EBV. But 2 years ago my simptoms get worse: I have swollen limph nodes...

I’m a 53 yr old female whose health took a turn in 2024. Started having high HR for amount of activity. I read somewhere that...

Can anyone answer if the Lyme and EBV coincide with each other and make false positives? I’ve been diagnosed with Lyme and Tick Borne relapsing...

Hi guys, I’m a 23 y/o female going on 24. I have been suffering with a chronic and reoccurring EBV infection since 19 years of...