Infectious Diseases Support Group

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Comments (585)

My ebv igg was over 600. I have a terminally ill family member. Should I stay...

https://connect.mayoclinic.org/comment/830407/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Mar 22, 2023

Had mono two years ago. Monospot was a weak positive. EBV panel showed positive for igG...

https://connect.mayoclinic.org/comment/271503/

Discussion: Post viral fatigue.

Support Group: Infectious Diseases

Posted: Aug 6, 2019

Hi Kristina! Definitely locate a good hematologist even if you have to travel. Have you had...

https://connect.mayoclinic.org/comment/1136499/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 5, 2024

I personally have not tried LDN. Now that my EBV IgM is negative, I don't see...

https://connect.mayoclinic.org/comment/135243/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 7, 2019

I’m a 40 year active male that had mono/ebv in college for about 10 months. Been...

https://connect.mayoclinic.org/comment/183953/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 22, 2018

Hi @bbresson, welcome. I moved your question about recommendation for EBV specialists in the Phoenix area...

https://connect.mayoclinic.org/comment/750376/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Sep 16, 2022

My 21 year old son has been battling EBV for two year. I am worried it...

https://connect.mayoclinic.org/comment/1395994/

Discussion: What do I do for Chronic EBV?

Support Group: Infectious Diseases

Posted: Sep 18, 2025

I have Chronic EBV and apparently Autonomic Dysfunction as well. My life is all but over...

https://connect.mayoclinic.org/comment/1150895/

Discussion: Post Interferon Syndrome

Support Group: Infectious Diseases

Posted: Oct 2, 2024

I just got lab results back: EBV Ab VCA, IgG: 94 EBV NA: >600 I don't...

https://connect.mayoclinic.org/comment/1027082/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Mar 3, 2024

Long story short... After 30 years of EBV and being dismissed by doctors, even after having...

https://connect.mayoclinic.org/comment/1521782/

Discussion: EBV ruining my life

Support Group: Infectious Diseases

Posted: Mar 7 12:42pm

That is such a good question which I’ve been trying to find the answer to. My...

https://connect.mayoclinic.org/comment/1052174/

Discussion: Lyme, tick borne relapsing Fever, and EBV positive

Support Group: Infectious Diseases

Posted: Apr 17, 2024

I would look outside the traditional system and find a functional medicine doctor. Specifically for Ozone...

https://connect.mayoclinic.org/comment/1229366/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Feb 4, 2025

Don't understand Mayo not recognizing chronic/reactivated EBV when their own literature on-line says otherwise. www.mayoclinic.org/diseases-conditions/mononucleosis/expert-answers/mononucleosis/faq-20058564

https://connect.mayoclinic.org/comment/135073/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 19, 2018

My adult daughter was just diagnosed with chronic EBV. She has a severe rash right now,...

https://connect.mayoclinic.org/comment/134944/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 31, 2018

Hi- just curious who are the 2 doctors in Minnesota that specialize in EBV? Do you...

https://connect.mayoclinic.org/comment/1031495/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Mar 11, 2024

Btw, has anyone experienced a very sore tongue with EBV? The doc said it’s because I’m...

https://connect.mayoclinic.org/comment/135214/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 24, 2019

I have found that this site gives a lot of information on how to supplement for...

https://connect.mayoclinic.org/comment/1431619/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Nov 5, 2025

My son was diagnosed with Mitral Valve prolapse at 19. He had heart palpitations, dizziness, and...

https://connect.mayoclinic.org/comment/1413314/

Discussion: Diseases caused by Epstein-Barr Virus

Support Group: Infectious Diseases

Posted: Oct 11, 2025

Hi @suesm. I am so sorry you are dealing with such a frustrating illness. I dealt...

https://connect.mayoclinic.org/comment/184039/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 19, 2019

I have high EBV antigens, 449.0 result. Drs are not concerned,. they just run tests without...

https://connect.mayoclinic.org/comment/931672/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 17, 2023

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