Infectious Diseases Support Group

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Comments (585)

I haven’t but interested. I have just tested positive for EBV antibodies very high.

https://connect.mayoclinic.org/comment/1374481/

Discussion: Has anyone used Monolaurin for Epstein Barre Virus?

Support Group: Autoimmune Diseases

Posted: Aug 19, 2025

Hi @mariajoyce . I'm sorry you are dealing with EBV. I have dealt with it myself...

https://connect.mayoclinic.org/comment/184046/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 23, 2019

I am new to this, I have been dealing with Chronic EBV for 9 months. God...

https://connect.mayoclinic.org/comment/913112/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 14, 2023

Finally I went with integrative medical approach and have had much success. I thought I was...

https://connect.mayoclinic.org/comment/135164/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 8, 2019

Hello. I have EBV but not sure if its Chronic. Been to several specialists and the...

https://connect.mayoclinic.org/comment/135023/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jun 6, 2018

Sounds a bit drastic. The trick is to starve off the virus itself ‘EBV’ and you...

https://connect.mayoclinic.org/comment/184114/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Jan 25, 2021

Hello @cupcake6884, Welcome to Connect. Thank you for sharing your experience. It is so helpful for...

https://connect.mayoclinic.org/comment/889212/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jul 3, 2023

It may be a good sign that you have good immunity now for EBV. Mine is...

https://connect.mayoclinic.org/comment/1306167/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: May 17, 2025

@luannkelly , I have apparently had EBV issues since I was a baby. I have always...

https://connect.mayoclinic.org/comment/184055/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 26, 2019

You can see if you qualify for this clinical trial. https://www.texaschildrens.org/departments/cancer-and-hematology-center/clinical-trials-and-novel-therapies/ebv-specific-t It's for any age group...

https://connect.mayoclinic.org/comment/1598522/

Discussion: EBV - Reactivation / Chronic EBV

Support Group: Infectious Diseases

Posted: Jun 15 9:29am

Hi @diggydo27. I'm sorry you are feeling so poorly. I have dealt with recurring EBV and...

https://connect.mayoclinic.org/comment/184064/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Apr 9, 2019

Well God speed momnxtdr and your son. I totally agree, this EBV is definitely not for...

https://connect.mayoclinic.org/comment/603770/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 22, 2021

I am a patient at Mayo Clinic and I have had chronic ebv , not CAEBV,...

https://connect.mayoclinic.org/comment/1225902/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Jan 31, 2025

I tested positive for EBV in 2016 despite the fact I had mono while a teenager....

https://connect.mayoclinic.org/comment/183947/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 19, 2018

My doctors didn’t explain why the numbers were so high. My other tests were all negative...

https://connect.mayoclinic.org/comment/309441/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: May 4, 2020

And stop any antiviral medications. From what I have read, it makes EBV WORSE, not better!

https://connect.mayoclinic.org/comment/184051/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 25, 2019

My daughter read that book and then asked to get tested for EBV, it was confirmed....

https://connect.mayoclinic.org/comment/134945/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 31, 2018

Hi, can you tell me more about 4th stage chronic ebv. Thank you

https://connect.mayoclinic.org/comment/134923/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 9, 2018

This may seem a little strange, but I was wondering had anyone on here had trouble...

https://connect.mayoclinic.org/comment/135179/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 15, 2019

Hi Sue, Please tell me, what are the diagnostic criteria to be diagnosed with CAEPV or...

https://connect.mayoclinic.org/comment/837560/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Apr 4, 2023

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