Infectious Diseases Support Group

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Comments (585)

I passed out and hit my head about a year ago. I spent two days in...

https://connect.mayoclinic.org/comment/931789/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 18, 2023

I just re/read your post. You are at a stage where I think you can do...

https://connect.mayoclinic.org/comment/899348/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Jul 20, 2023

Hi Kimberly, you sound just like me, a roller coaster. I feel bad then as I...

https://connect.mayoclinic.org/comment/135133/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Dec 31, 2018

Hi @bayhorse . I did The Dynamic Neural Retraining System (DNRS) https://retrainingthebrain.com/ It's based on the...

https://connect.mayoclinic.org/comment/764243/

Discussion: Has anyone used Monolaurin for Epstein Barre Virus?

Support Group: Autoimmune Diseases

Posted: Oct 22, 2022

After my 2nd Covid shot I was walking to my car and could not walk a...

https://connect.mayoclinic.org/comment/740441/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Aug 22, 2022

Hello, Hope everyone is well. I am a 28 year old female. Last year I was...

https://connect.mayoclinic.org/comment/40464/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 31, 2018

I sympathize with your son. I came down with mono twice approximately eight months apart when...

https://connect.mayoclinic.org/comment/733044/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 1, 2022

Hello @gracie927, Welcome to Connect, and thank you for sharing your history. I can imagine how...

https://connect.mayoclinic.org/comment/134880/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 15, 2017

Hi Nataliem, I hope I can encourage you today by saying YES you can get better!...

https://connect.mayoclinic.org/comment/135302/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 25, 2020

Dear Bfoxx, My heart goes out to you. I too have been battling CEBV for the...

https://connect.mayoclinic.org/comment/210213/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 1, 2018

Hello- My son has been dealing with CAEBV for over 2 years and had to be...

https://connect.mayoclinic.org/comment/135030/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jun 14, 2018

I had mono first at 20 years old. Got feeling better completely within 6 weeks. Two...

https://connect.mayoclinic.org/comment/184077/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Sep 19, 2019

Hi, I’m new to here after researching profusely for the last 3 months which I can...

https://connect.mayoclinic.org/comment/135138/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 2, 2019

I am desperate. I am 47, and I had Mono in December 1987 so bad that...

https://connect.mayoclinic.org/comment/134878/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jul 14, 2017

@sherryntn - I think of it more as an allergy shot - so its not like...

https://connect.mayoclinic.org/comment/135222/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 28, 2019

My 15 yr old son was diagnosed with mono 5 months ago. He continues to suffer...

https://connect.mayoclinic.org/comment/134995/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 6, 2018

My son has had every possible test done by immunologist, infectious disease, internal medicine and neurology....

https://connect.mayoclinic.org/comment/134978/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 26, 2018

Hello all! I have Severe CAEBV. I've been steadily worsening probably since about 2014. Recently, all...

https://connect.mayoclinic.org/comment/689212/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 13, 2022

It’s absolutely awful. I’ve been reading a lot about MECFS, and that and so many other...

https://connect.mayoclinic.org/comment/1324403/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jun 10, 2025

Please don't apologize for writing a book! Your story parallels mine in a couple ways ....

https://connect.mayoclinic.org/comment/135246/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 13, 2019

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