Infectious Diseases Support Group

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Comments (585)

i have chronic active ebv and the only way i would get better is if i...

https://connect.mayoclinic.org/comment/135250/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 17, 2019

I just saw this post and I can relate. My EBV VCA IgG is above 600....

https://connect.mayoclinic.org/comment/1211693/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jan 14, 2025

My naturopath has me on Monolaurin supplement called "Lauricidin" - 3000mg of Monolaurin a dose. I...

https://connect.mayoclinic.org/comment/135058/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 7, 2018

Yes, it's very difficult to be upbeat when you hurt 24/7. I have a neighbor who...

https://connect.mayoclinic.org/comment/219319/

Discussion: Ebstein Barr & Fibromyalgia

Support Group: Chronic Pain

Posted: Feb 8, 2020

Hi Sue, I'm 64 and last year told my sister I thought I was dying. Fast...

https://connect.mayoclinic.org/comment/135249/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Mar 17, 2019

There is no treatment in the West for this disease. It is more prominent in Asia...

https://connect.mayoclinic.org/comment/1001170/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Jan 21, 2024

Dear @baileygjcar, Your worried post is the first thing l read this morning, opening my laptop....

https://connect.mayoclinic.org/comment/817919/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Feb 27, 2023

Hi, I’m 60 yo and had Mono when I was 19yo. My life was never the...

https://connect.mayoclinic.org/comment/868809/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: May 29, 2023

Thank you! These responses have been helpful! I've been trying to think through again some of...

https://connect.mayoclinic.org/comment/184101/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Jan 4, 2021

Hello my name is Charlie @nomadkazoo new to this form. I'm 57 2015-2016 lived through 10...

https://connect.mayoclinic.org/comment/135082/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 5, 2018

@kkathysan Thank you for your reply and all this great information! Unfortunately my brother in law...

https://connect.mayoclinic.org/comment/135303/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 25, 2020

I am learning all I can about EBV. Thinking back I have had several..I guess you...

https://connect.mayoclinic.org/comment/135104/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Nov 3, 2018

Have you had a CT scan done? I went through something similar and through a CT...

https://connect.mayoclinic.org/comment/931763/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Sep 18, 2023

Hello! I am also in the same boat, after being silenced by multiple doctors I’m doing...

https://connect.mayoclinic.org/comment/760712/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Oct 13, 2022

Hello, @catzarecool – Welcome to Mayo Clinic Connect. I am happy you replied to this thread...

https://connect.mayoclinic.org/comment/135310/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Apr 10, 2020

Hi Lori No not yet. I have a virtual call set up for this coming week....

https://connect.mayoclinic.org/comment/963552/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Nov 12, 2023

Jonnybear619 are you still feeling bad? My 25 year old son has been dealing with this...

https://connect.mayoclinic.org/comment/134927/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 10, 2018

I stopped it because I had improved a lot. Also, I was taking a lot of...

https://connect.mayoclinic.org/comment/1159462/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Oct 19, 2024

@jgee18 Hi Jenny. It's hard to say if the Valtrex (valacyclovir) is helping since I am...

https://connect.mayoclinic.org/comment/183978/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Sep 24, 2018

Hi, new to this support lifeline. Hoping there are other people who can shed light on...

https://connect.mayoclinic.org/comment/1598228/

Discussion: EBV - Reactivation / Chronic EBV

Support Group: Infectious Diseases

Posted: Jun 14 9:30pm

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