Infectious Diseases Support Group

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Comments (585)

There is no test for M.E./ Cfs. They say it is diagnosed by exclusion. If your...

https://connect.mayoclinic.org/comment/1164136/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Oct 28, 2024

Thanks for the information on EBV. I am at a total loss when it comes to...

https://connect.mayoclinic.org/comment/184047/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 25, 2019

Had new infection of EBV. Now have been diagnosed with chronic fatigue and fibromyalgia. Started aquatic...

https://connect.mayoclinic.org/comment/135007/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 3, 2018

darkmatter53, I too live in Florida and am always trying to find medical doctors who understand...

https://connect.mayoclinic.org/comment/183948/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Aug 19, 2018

I am taking different supplements with the hopes with putting this EBV virus to rest. Unfortunately,...

https://connect.mayoclinic.org/comment/184048/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Mar 25, 2019

If you go to lab tests online there is a good explanation of EBV and antibody...

https://connect.mayoclinic.org/comment/184031/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Feb 9, 2019

How old is your son? My son is 7 and has been homebound since early December....

https://connect.mayoclinic.org/comment/135218/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 27, 2019

@012064 When I had full blown Mono the Dr put me on a regimen of Vitamins...

https://connect.mayoclinic.org/comment/135176/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 11, 2019

Hi can I ask you if the supplements you stated here helped you with symptoms and...

https://connect.mayoclinic.org/comment/806167/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 4, 2023

Glad I found your story hippiechic! I just discovered I have Active EBV and like you...

https://connect.mayoclinic.org/comment/603772/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 22, 2021

@kkathysan Thanks for your post. Its wonderful you've finally found this doctor to help with the...

https://connect.mayoclinic.org/comment/1413121/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Oct 11, 2025

Justin i had similar issues with chest pain, i have reactivated ebv. My ferritin levels were...

https://connect.mayoclinic.org/comment/1292947/

Discussion: Is chronic reactivated EBV different from chronic active EBV?

Support Group: Infectious Diseases

Posted: Apr 29, 2025

@coryelizabeth I have heard different things regarding this. However, I have had EBV relapses (with a...

https://connect.mayoclinic.org/comment/135180/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Jan 15, 2019

Hi, I am 39. Off the charts on the EBV markers. I had mono around age...

https://connect.mayoclinic.org/comment/889119/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jul 3, 2023

Yes I have. There are 2 doctors witb Mayo that work with EBV patients and they...

https://connect.mayoclinic.org/comment/1001188/

Discussion: Doctor Recommendations for Chronic active Epstein–Barr virus (CAEBV)

Support Group: Infectious Diseases

Posted: Jan 21, 2024

People who understand! I had mono terribly in 2010. Ever since I get these flare ups...

https://connect.mayoclinic.org/comment/898029/

Discussion: Epstein Barr Nuclear AG AB IGG result of over 600

Support Group: Infectious Diseases

Posted: Jul 18, 2023

Hi @kittykiernan and @34micasita welcome to Connect. @kittykiernan you may have noticed I moved your post...

https://connect.mayoclinic.org/comment/135268/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Aug 18, 2019

Hi, Colleen: Thank you for adding my question to the Infectious Diseases group. I posted it...

https://connect.mayoclinic.org/comment/762747/

Discussion: Has anyone used Monolaurin for Epstein Barre Virus?

Support Group: Autoimmune Diseases

Posted: Oct 18, 2022

I feel your pain. It’s beyond frustrating and had EBV on and off the last 2...

https://connect.mayoclinic.org/comment/604160/

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: May 23, 2021

I have had Chronic Active EBV since 1994. Felt like a guinea pig with MD's trialing...

https://connect.mayoclinic.org/comment/1487796/

Discussion: I have elevated Epstein-Barr virus. What proven treatments help?

Support Group: Infectious Diseases

Posted: Jan 21 7:16am

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