Hypertrophic Cardiomyopathy (HCM) Support Group

My daughter, who is now 18, has HOCM. She has an ICD and also had a myectomy last August. We knew before her surgery that...

HOCM diagnosis in May 2023. Was put on Camzyos for 6 mos. My symptoms continued to get worse: weight loss, dizziness, light headed, passing out,...

Hi, I'm a Chinese working in the US. My mom is 70 year old and currently lives in China. In September, my mom fainted once....

I just spent 5 days in the hospital, heart cath, stress test and echo. My EF is preserved. No obstruction. The electrophysiologist told me my...

Hi everyone, I’m a 42-year-old cyclist diagnosed with Non-Obstructive HCM (nHCM) in 2015. I’m looking for insight into whether TRT (Testosterone Replacement Therapy) could have...

I had a septal myectomy, with related mitral valve repair, on July 24, 2025, 23 days ago. I’ll relate below how I decided on a...

I have just received my diagnosis of Obstructive HCM. I had a preop echo before spine surgery, then a cardiac MRI followed by a stress...

Hello, 38 yrs old here. Diagnosed 2 years ago and have gone from a 30% blockage to 70%. I didn't take my diagnosis very serious...

I have HCM (without blockage) and I am not a candidate for the new medication (Camzyoz?) and no other medications relieve my symptoms (channel/beta blockers...