Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi @jasonfromco, and welcome to Mayo Clinic Connect. I'm glad you found this online support group...

https://connect.mayoclinic.org/comment/1362165/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 2, 2025

You have had a lot happen in a short amount of time @rmhc123 , Wow. I...

https://connect.mayoclinic.org/comment/1062540/

Discussion: HCM with no options for medication for relief of symptoms

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 5, 2024

You have a lot to consider @mckenzie541! Colleen laid out some great questions for you to...

https://connect.mayoclinic.org/comment/861451/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 17, 2023

Hi @mspop111, It sounds like you are one of many for whom Camzyos just isn't going...

https://connect.mayoclinic.org/comment/1185550/

Discussion: Has anyone had minimally invasive Septal Myectomy?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 6, 2024

@meryl59 I got off AMI several years ago after reading the toxic affects of it. I...

https://connect.mayoclinic.org/comment/1009221/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 4, 2024

HCM has Been something i have all my life according to the Mayo Cardiologist! I pretty...

https://connect.mayoclinic.org/comment/1342505/

Discussion: afraid that I may have Hypertrophic cardiomyopathy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 6, 2025

I’m a 73 year old woman who was diagnosed with HCM two years ago. In one...

https://connect.mayoclinic.org/comment/1413267/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 11, 2025

I'm Jeny, an 83 yr old female whose been on canzyos going on 3 yrs. I...

https://connect.mayoclinic.org/comment/1316834/

Discussion: Camzyos mg increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2025

@dmarino4900 I am not familiar with Camzyoz. You posted causes heart failure. Isn't HCM a form...

https://connect.mayoclinic.org/comment/1361867/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 2, 2025

Hello Debra, the e.mail comes from Mayo clinic but don’t know how to get to settings...

https://connect.mayoclinic.org/comment/1116124/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 1, 2024

My Dr. Was helpful by talking to pharmacy & Ins Co. On my behalf. I took...

https://connect.mayoclinic.org/comment/928743/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 12, 2023

Yes I always have the bad luck too… everyone doing great on Camyzos and I wasn’t...

https://connect.mayoclinic.org/comment/1053067/

Discussion: Has anyone had OHCM symptoms return only 9 months post septal myectomy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 18, 2024

Hello All, I've being following this group since July. I start the Camyzos this coming Tuesday....

https://connect.mayoclinic.org/comment/958646/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 3, 2023

Severe aortic ———-? Changed after TAVR procedure to HCM. ON CAMYZOS for 5 months. No improvement....

https://connect.mayoclinic.org/comment/868474/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 29, 2023

It would be worth asking from what i was told by the tech that does the...

https://connect.mayoclinic.org/comment/1314922/

Discussion: Camzyos improved my gradient but my symptoms are not better

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 28, 2025

On Camyzos for about 12 days...initially I felt great and alive but then the headaches started...

https://connect.mayoclinic.org/comment/1078600/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 31, 2024

Hello. I'm wondering if someone might be able to tell me what determines if one is...

https://connect.mayoclinic.org/comment/1199075/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 28, 2024

Hi, its good to hear that u have benefited fr this medication, Mavacamten (Brand Name Camyzos)...

https://connect.mayoclinic.org/comment/1132092/

Discussion: Can HCM cause chest pain?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 28, 2024

Hello, I have HOCM with symptoms and am not a candidate for an ablation or Cazmyos...

https://connect.mayoclinic.org/comment/1116962/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Aug 3, 2024

Thank you for sharing your experience. I have also lost a lot of weight since April...

https://connect.mayoclinic.org/comment/963479/

Discussion: Camzyos: Can it cause low blood pressure?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2023

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