Hypertrophic Cardiomyopathy (HCM) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,603 total results

Comments (1,494)

@hougoss I’m on Camzyos as well as Reclast. No issues

https://connect.mayoclinic.org/comment/1474220/

Discussion: Anyone here with HCM that also has osteoporosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 4 10:56am

Why did you stop taking Camzyos?

https://connect.mayoclinic.org/comment/1142551/

Discussion: Effects after stopping Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 16, 2024

Good morning-I am wondering if any of you have had any procedures done, like a colonoscopy,...

https://connect.mayoclinic.org/comment/898496/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 19, 2023

when my blood pressure was up since starting camzyos the heart failure clinic and their pharmacist...

https://connect.mayoclinic.org/comment/1476306/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 7 4:45am

I started Camzyos in August/2024. Just had a Moderna Covid booster last week. Very sore arm...

https://connect.mayoclinic.org/comment/1288695/

Discussion: Camzyos and Covid Vaccines/Boosters

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 24, 2025

With camzyos my resting is 13 and with valsalva its 38 So camzyos has allowed me...

https://connect.mayoclinic.org/comment/1270304/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 30, 2025

@suzict Yes! omeprazole is one of the medications that is specifically warned about. As I said,...

https://connect.mayoclinic.org/comment/1218293/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 21, 2025

Hello @kalu2512, First of all...thank you for serving your Country. It is because of brave men...

https://connect.mayoclinic.org/comment/1112678/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 27, 2024

Hello there @yayee, and welcome to Mayo Connect. I'm glad you found the Hypertrophic group. Have...

https://connect.mayoclinic.org/comment/1068868/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 16, 2024

The cost of the medicine (CAMZYOS) can be covered by insurance, if not, then search some...

https://connect.mayoclinic.org/comment/1115928/

Discussion: Left ventricle leather

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 1, 2024

@jootzy Camzyos is a new drug and supposedly like a miracle.

https://connect.mayoclinic.org/comment/1459787/

Discussion: HCM getting worse?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 13, 2025

Hi,My name Mark one year on Camzyos

https://connect.mayoclinic.org/comment/1100996/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 7, 2024

Hi mspope...I really appreciate your comment and I would like to know what med your cardiologist...

https://connect.mayoclinic.org/comment/1078994/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 1, 2024

@nanamc1957 Although I'm the wrong kind of doctor (Ph.D. not MD), I'd be more concerned about...

https://connect.mayoclinic.org/comment/1547441/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 10 4:51pm

Thx for the info regarding thyroid meds. I ve been taking them for 30 years but...

https://connect.mayoclinic.org/comment/1581105/

Discussion: typical side effect for Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 6 days ago

me too! thought it was the Camzyos but maybe it’s the Metroprol?

https://connect.mayoclinic.org/comment/1048883/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 11, 2024

Why did you stop Camzyos? What is a COE?

https://connect.mayoclinic.org/comment/1110416/

Discussion: Effects after stopping Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 23, 2024

I have improved greatly on 10 mg of Camzyos. I am labeled "severe" HCOM. My doctor...

https://connect.mayoclinic.org/comment/1059428/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 29, 2024

I am about to have the septal myectomy in 3 days. I, too, am worried about...

https://connect.mayoclinic.org/comment/900186/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 22, 2023

I will be starting camzyos next Wednesday or Thursday. David

https://connect.mayoclinic.org/comment/957435/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 1, 2023

Heart & Blood Health

10924

1 minute ago

Heart Rhythm Conditions

9039

2 hours ago

Aortic Aneurysms

3772

8 hours ago

Pacemaker & ICDs

775

9 hours ago

Visiting Mayo Clinic

6930

1 day ago