Hypertrophic Cardiomyopathy (HCM) Support Group

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After 4 months on camzyos and doing really well; I went into afib two weeks ago....

https://connect.mayoclinic.org/comment/1045278/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 4, 2024

Hello all. I just started camzyos I’m on day 11. I was wondering if anyone on...

https://connect.mayoclinic.org/comment/910225/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 9, 2023

I’m curious about where Camzyos will be made available internationally for patients. Also, does anyone have...

https://connect.mayoclinic.org/comment/868880/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 29, 2023

Why did you stop Camzyos? What is a COE?

https://connect.mayoclinic.org/comment/1110416/

Discussion: Effects after stopping Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 23, 2024

me too! thought it was the Camzyos but maybe it’s the Metroprol?

https://connect.mayoclinic.org/comment/1048883/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 11, 2024

@mmicahk thank you! The other question is if Kaiser covers Camzyos cost? Is Dr. Ann Sheridan...

https://connect.mayoclinic.org/comment/1437110/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 12, 2025

Good morning! Did you start Camzyos yet? :)

https://connect.mayoclinic.org/comment/855451/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 6, 2023

Hello all. I posted on this thread about learning that I could take Lexapro for anxiety...

https://connect.mayoclinic.org/comment/902429/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 26, 2023

Hello @andyherman3, and a BIG Welcome to Mayo Connect. Thank you for sharing your experience on...

https://connect.mayoclinic.org/comment/980296/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 14, 2023

Great info here. My cardio is very up to date and the doctor he consults with...

https://connect.mayoclinic.org/comment/1169565/

Discussion: Frustrated: Acing the treadmill test but chest tightness while walking

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2024

When I started on Camzyos I was told to stay on my metoprolol, but I also...

https://connect.mayoclinic.org/comment/1477505/

Discussion: Side Effects starting on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: 1 day ago

June, sorry for slow response to your question. Aug. 2021 (before Camzyos) : Peak LVOT gradient...

https://connect.mayoclinic.org/comment/1184660/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 4, 2024

Are you on Medicare or traditional insurance? I am 66 and still working and get Camzyos...

https://connect.mayoclinic.org/comment/1166671/

Discussion: Cost of Camzyos on Medicare Drug Plan

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 2, 2024

Has anyone flown on an airplane, while taking Camzyos?

https://connect.mayoclinic.org/comment/832937/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 27, 2023

@boatsforlife Yes! Another Canadian here on Camzyos. This med makes a phenomenonal difference for me. I...

https://connect.mayoclinic.org/comment/1450784/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 1, 2025

Sorry for the late response! Listen to everyone here and make the mayo your choice:) I...

https://connect.mayoclinic.org/comment/1248667/

Discussion: Myectomy Needed

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2, 2025

Hi, I started Camzyos program in June at a lower 2.5 dose for first month. I...

https://connect.mayoclinic.org/comment/1131518/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 27, 2024

I have been on Camzyos 2.5mg for 18+ months. My good story is just like "Boatsforlife"...

https://connect.mayoclinic.org/comment/1024708/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 29, 2024

Good Morning HCM Family, I took my first Camzyos pill this morning. So begins my journey...

https://connect.mayoclinic.org/comment/877128/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 12, 2023

I am taking metoprolol ER succinate with no side effects. My first dose of camzyos was...

https://connect.mayoclinic.org/comment/948445/

Discussion: Camzyos and insomnia.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 16, 2023

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