Hypertrophic Cardiomyopathy (HCM) Support Group

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Yes Canada. Yes to drug name Pretty much 39 years ago. Then it was apical hypertrophic...

https://connect.mayoclinic.org/comment/959987/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 6, 2023

Hello @ptmaxi Welcome to Mayo Clinic Connect. This is a great place to come for information...

https://connect.mayoclinic.org/comment/1502012/

Discussion: Can my 75 year old wife have sex while on camzyos?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 9 6:22pm

Hello Everyone, I was diagnosed last October with HOCM, and had been on increasing doses of...

https://connect.mayoclinic.org/comment/1384485/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 1, 2025

Sounds like we have had a lot of the same path leading into this. What is...

https://connect.mayoclinic.org/comment/1251299/

Discussion: Septal Myectomy Consideration

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 5, 2025

I was at the MAYO clinic for my yearly appointment when you emailed me. So sorry...

https://connect.mayoclinic.org/comment/1459307/

Discussion: HCM getting worse?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 12, 2025

Hi @garyhawthorn, and a warm welcome to Mayo Clinic Connect. You've come to the right place...

https://connect.mayoclinic.org/comment/1163188/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 26, 2024

Wonderful to hear you are persevering. I’m 70 this year and having knee surgery next week....

https://connect.mayoclinic.org/comment/1067876/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 14, 2024

@elepez I take 10 mg and no, I did not gain weight. I believe I will...

https://connect.mayoclinic.org/comment/1441813/

Discussion: Amazing result from taking mavacamten

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 18, 2025

@manuelpo thanks for your comment and I’m glad that Camzyos is helping you! It seems to...

https://connect.mayoclinic.org/comment/1500002/

Discussion: Camzyos vs. Surgery

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 7 8:12am

@janeal99 - Hi! Welcome to the Camzyos family. I'm 61 male, on Camzyos for just over...

https://connect.mayoclinic.org/comment/1437552/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 13, 2025

Hello and welcome to Mayo Connect @joycehocm. Have you had a chance to poke around here...

https://connect.mayoclinic.org/comment/1169559/

Discussion: Frustrated: Acing the treadmill test but chest tightness while walking

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 7, 2024

Absolutely! Camzyos has been a great help for me. My experience was a few days of...

https://connect.mayoclinic.org/comment/913544/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 15, 2023

Thank you! Yes I feel so thankful I have him as my doctor! He is the...

https://connect.mayoclinic.org/comment/885982/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 27, 2023

Hi all, I have started Camzyos 1 month ago and just had my first ECHO since...

https://connect.mayoclinic.org/comment/1476305/

Discussion: Has Anyone taking Camzyos Experienced Higher Blood Pressure Readings?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 7 4:42am

Hi @jmr091805 and welcome. You can find all kinds of terrific real-life experience from folks here....

https://connect.mayoclinic.org/comment/1277360/

Discussion: What surgeries are available for obstructive HOCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 8, 2025

I wonder if you have the weblink to purchase the Cigna PPO insurance so I can...

https://connect.mayoclinic.org/comment/1018745/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 19, 2024

Thank you Debra. I did read the article but found no mention of percentages. My %...

https://connect.mayoclinic.org/comment/987657/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 28, 2023

I was noticeably better after 2days on Camzyos 5 mg, I have continued it for 7...

https://connect.mayoclinic.org/comment/1177202/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 20, 2024

Thank you for your input. Are you taking Camzyos at the same time? I am trying...

https://connect.mayoclinic.org/comment/999215/

Discussion: Anyone taking GIP or GLP-1 meds with Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 17, 2024

Let me correct that. Two weeks later, and I am itching like crazy. It seems to...

https://connect.mayoclinic.org/comment/1258221/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 15, 2025

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