Hypertrophic Cardiomyopathy (HCM) Support Group

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Talk to a Cardiologist specialist in HCM to treat it. Ask him if Camzyos is an...

https://connect.mayoclinic.org/comment/1190995/

Discussion: Anyone have input on living with symptoms from cardiomyopathy?

Support Group: Heart & Blood Health

Posted: Dec 15, 2024

Hi Debra, thank you for your reply and reflections, and congratulations on your management of your...

https://connect.mayoclinic.org/comment/1578570/

Discussion: How to decide whether to take Camzyos or have surgery?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 19 5:44pm

You sound just like me. I hope it keeps improving. How long have you been on...

https://connect.mayoclinic.org/comment/1078077/

Discussion: Camzyos and heart murmur

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 30, 2024

Hi all. Has anyone noticed a queasy stomach while on Camzyos? Been on it 10 days...

https://connect.mayoclinic.org/comment/972183/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 29, 2023

I have been taking Camzyos for 5 months and now I can walk without being out...

https://connect.mayoclinic.org/comment/858251/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 11, 2023

Camzyos may get paid in full for you through the HealthWell Foundation. Here is their weblink...

https://connect.mayoclinic.org/comment/1378041/

Discussion: Cost of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 24, 2025

Hi @peggynurse. I take my Camzyos at night. That was the recommendation from my cardiologist and...

https://connect.mayoclinic.org/comment/1209310/

Discussion: I take 5mg Camzyos in the morning.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 11, 2025

5mg Camzyos 0900 50mg metropolol Weight 268.6 12oz coffee 16oz Sprite Zero No side effects but...

https://connect.mayoclinic.org/comment/880716/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 18, 2023

My cardiologist switched me from Nexium to Pantoprazole in anticipation of taking Camzyos. When I gave...

https://connect.mayoclinic.org/comment/877967/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 13, 2023

Working with an independent insurance agent who will research all insurance plans to find one that...

https://connect.mayoclinic.org/comment/1472624/

Discussion: Do people with bad or no insurance simply die from HOCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 2 7:08am

I was told ablation not as effective as myectomy. And I’m terrified of surgery. My intention...

https://connect.mayoclinic.org/comment/1308643/

Discussion: Camzyos mg increase

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 20, 2025

According to my medicare statement Camzyos is $8400 a month!!! I don't pay anything having that...

https://connect.mayoclinic.org/comment/954618/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 27, 2023

Hello @whidbey and welcome to Mayo Connect. @kelliw is a Camzyos champion and her advice is...

https://connect.mayoclinic.org/comment/906285/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 2, 2023

I am doing great on Camzyos 5 mg my gradient pressure went down from over 200...

https://connect.mayoclinic.org/comment/1163610/

Discussion: How long before benefits of Camzyos were realized?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 27, 2024

Hi. I’ve been on Camzyos for almost a year. So glad to hear from Karen317. I...

https://connect.mayoclinic.org/comment/1051001/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 15, 2024

Welcome to Mayo Connect, Daral from Ontario! I assume you mean Ontario Canada, not Ontario, California!...

https://connect.mayoclinic.org/comment/959911/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Nov 6, 2023

Good morning-I am going to have surgery on my foot this summer. I am a little...

https://connect.mayoclinic.org/comment/1073258/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 23, 2024

Ask a Certified Camzyos Cardiologist to prescribe you an Echocardiogram. That is the way they can...

https://connect.mayoclinic.org/comment/1313064/

Discussion: Diagnosis Problem

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 26, 2025

I am 79 and Medicare is paying for my Camzyos. Your doctor needs to pursue this...

https://connect.mayoclinic.org/comment/1517657/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 2 7:32am

Have you tried switching your Camzyos dosage to the evening? I have and it has helped...

https://connect.mayoclinic.org/comment/1223841/

Discussion: HCM Fatigue and Poor Sleep - What Can I Do?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 28, 2025

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