Hypertrophic Cardiomyopathy (HCM) Support Group

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Hi John - So glad your gradient is good. I am not familiar with the cordal...

https://connect.mayoclinic.org/comment/1271861/

Discussion: Feeling tired all the time- One month on higher dose of Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Apr 1, 2025

I was told two weeks was all the Camzyos withdrawal time I needed prior to septal...

https://connect.mayoclinic.org/comment/919332/

Discussion: Has anyone stopped taking camzyos? I have stopped and feel very sick.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Aug 26, 2023

Just started on 5 mg of Camzyos yesterday. Of course it’s too early to see any...

https://connect.mayoclinic.org/comment/1565139/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: May 2 8:25pm

Wishing you the best results possible. Feeling so much better after I started on Camzyos.

https://connect.mayoclinic.org/comment/1014356/

Discussion: HOCM & VFib amiodarone, sotalol,camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 12, 2024

@hazmat1, I'll be interested to hear what you learn after your evaluation and if you'll be...

https://connect.mayoclinic.org/comment/719408/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 20, 2022

Welcome to the Camzyos group on Mayo Connect @eltorro75. You posted in March that Camzyos was...

https://connect.mayoclinic.org/comment/987132/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 27, 2023

So did the doctor not recommend Camzyos as a treatment? Just wondering if the alcohol ablation...

https://connect.mayoclinic.org/comment/1360518/

Discussion: Just Diagnosed with HCOM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 31, 2025

I take Prolia injections every 6 months. Also take Camzyos. No issues taking the 2 medication.

https://connect.mayoclinic.org/comment/1474927/

Discussion: Anyone here with HCM that also has osteoporosis?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 5 9:03am

I would like info about the effects/interactions of Camzyos with anesthesia drugs. I’m going to have...

https://connect.mayoclinic.org/comment/988946/

Discussion: HCM, Camzyos & Knee Replacement: What are the risks?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Dec 30, 2023

I am on 2.5 Camzyos. I started on 5 mg and they moved me down, which...

https://connect.mayoclinic.org/comment/1110523/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 23, 2024

My Medicare supplement is through Anthem. My Medicare RX is AARP through United HealthCare. I live...

https://connect.mayoclinic.org/comment/1160928/

Discussion: Is Camzyos effective long term?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Oct 22, 2024

@joanallione , I'm thrilled to hear that you are doing so well on Camzyos so far...

https://connect.mayoclinic.org/comment/1227031/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 1, 2025

Greetings to all. I’m still trying to find someone who has had a TKR while on...

https://connect.mayoclinic.org/comment/996572/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 13, 2024

I sent my doctor a note telling her that I would not increase my dosage to...

https://connect.mayoclinic.org/comment/1267625/

Discussion: Camzyos side effect of itchiness?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 26, 2025

Hi my name is Melanie and I have HCM, I am on my second month of...

https://connect.mayoclinic.org/comment/1402857/

Discussion: HCM-ers: Introduce yourself or just say hi

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Sep 27, 2025

Welcome @snewbrough Gosh, now I have to live up to "sage advice and wisdom"? No pressure...

https://connect.mayoclinic.org/comment/1537092/

Discussion: Your Experience on Camzyos first month?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 28 8:40am

@dinahj I am so glad to read that Camzyos is working well for you, and I...

https://connect.mayoclinic.org/comment/1538615/

Discussion: New HCM diagnosis. Worst symptom is mucus buildup. Is this normal?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Mar 30 9:23am

I just had my second echocardiogram being on Camzyos. I started with a LVOT gradient of...

https://connect.mayoclinic.org/comment/893492/

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jul 10, 2023

73 yr old male with HOCM. Started Camzyos one year ago. Long documented history of HOCM...

https://connect.mayoclinic.org/comment/870328/

Discussion: Trouble eating with HCM

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 1, 2023

https://www.camzyos.com/taking-camzyos/safety-and-side-effects Hi @andyherman3, that must be scary for you! I posted the above link from the...

https://connect.mayoclinic.org/comment/1321002/

Discussion: On Camzyos with new pericardial effusion.

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jun 5, 2025

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