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Head & Neck Cancer Support Group

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Discussions (14)
Relief from Radiation Fibrosis Syndrome
Had SCC on the base of my tongue and a couple of lymph nodes in 2020 and was treated with radiation and chemo. Like many...
Support Group: Head & Neck Cancer
Last active: Jul 7 5:41pm
Looking for help with radiation fibrosis; Tips?
Looking for help with radiation fibrosis following radiation of head and neck and a modified neck dissection . I have had PT and do daily...
Support Group: Head & Neck Cancer
Last active: Apr 30 1:06pm
Treatment for long term radiation fibrosis
I has been 16 years after my radiation treatments from head neck cancer. I have stiffened fibrosis in right side of neck. I was reading...
Support Group: Head & Neck Cancer
Last active: May 20 12:41pm
Any recommendations of hands-on work for radiation fibrosis (tongue)?
Any recommendations of hands-on work for radiation fibrosis. 10 years fairly good results from base of tongue cancer treatment, Now the back of tongue where...
Support Group: Head & Neck Cancer
Last active: Jun 16 2:04pm
Late Effects Neck Fibrosis: Anyone tried the PENTO protocol?
Has anybody tried the following regime:PENTOX Protocol: A combination of pentoxifylline and Vitamin E ? My concern even though my doctor said it would be...
Support Group: Head & Neck Cancer
Last active: Jul 11 8:56pm
HELP! Post Cancer Throat Pain
My dad (now 83 years old) had tonsil cancer 10 years ago. 35 radiation treatments plus chemo killed the tumor. This past year, radiation fibrosis/necrosis...
Support Group: Head & Neck Cancer
Last active: Oct 3, 2024
Expressing your damaged Salivary Glands
Since having radiation on my tonsil area my doctor told me that my salivary gland was going to stop working. Since ending radiation, I've noticed...
Support Group: Head & Neck Cancer
Last active: Mar 28 10:15am
Annual Testing - Long Term Survivors
I was diagnosed and treated in 2008. Cancer in tonsil. SCC. I don't know the root cause (HPV/other). 33 radiation. 6 chemo cisplatin & taxol....
Support Group: Head & Neck Cancer
Last active: 2 hours ago
Speaking is difficult because of radiation treatment over 20 years ago
Will I lose the ability to talk completely? I was diagnosed with stage 4 tonsil cancer in 2003 which was treated with both radiation and...
Support Group: Head & Neck Cancer
Last active: Jun 2 7:28pm
Fat grafting for swallowing and speech issues caused by radiation?
I’m a 16 year tonsil cancer survivor, but I had stage IV and got hit with high dose of radiation and have been dealing with...
Support Group: Head & Neck Cancer
Last active: May 19 7:28am
Insomnia after Neck Radiation
Hello, I had HPV tonsil and lymph nodes surgery. I also had 25 rounds of radiation. That was very rough and I'm still recovering. I'm...
Support Group: Head & Neck Cancer
Last active: Feb 25 5:53pm
Long term radiotherapy effects and fear of relapse.
Hello. IN 2018 I had been diagnosed with CUP cancer with metastasis in the neck area lymph nodes. After surgery, 3 courses of Сisplatin+Fluorouracil and...
Support Group: Head & Neck Cancer
Last active: Aug 28, 2025
Caretaker: Laryngectomy alternatives?
My partner was treated in 2015 for Stage IVa left true vocal fold SCC. Treated with Chemo (Cisplatin) and Radiation. Followed by bilateral neck dissection....
Support Group: Head & Neck Cancer
Last active: Apr 7, 2025
Anyone have success with red light therapy for radiation effects?
I've read about it and considering trying it. Please post if you've used it for your H and N cancer healing and or radiation fibrosis.Thank...
Support Group: Head & Neck Cancer
Last active: Apr 15 10:30pm