Caregivers: Dementia Support Group

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Comments (564)

Hello: You are not alone. I also have the diagnosis of LBD with Parkinsonism. I am...

https://connect.mayoclinic.org/comment/617497/

Discussion: Recent LBD with Parkinsonism diagnosis

Support Group: Parkinson's Disease

Posted: Jul 17, 2021

We live in a "rural healthcare" setting and don't have many specialists near us so my...

https://connect.mayoclinic.org/comment/1080669/

Discussion: Anyone felt frustrated with doctors and trying to find a diagnosis?

Support Group: Caregivers: Dementia

Posted: Jun 4, 2024

I'm so thankful that I found this forum. I have been looking at other forums/websites for...

https://connect.mayoclinic.org/comment/1182956/

Discussion: Not Incontinence but bathroom messes and clothes soiling

Support Group: Caregivers: Dementia

Posted: Dec 1, 2024

My wife was diagnosed with MCI in 2011 and with Alzheimer's disease in 2012. I remember...

https://connect.mayoclinic.org/comment/328802/

Discussion: My wife forgetting: Diagnosed with MCI

Support Group: Caregivers: Dementia

Posted: Nov 29, 2020

Hello, I'm Jim, 53yo male, 15 years post awake craniotomy to remove a benign tumor that...

https://connect.mayoclinic.org/comment/1083198/

Discussion: Have you got Primary Progressive Apraxia of Speech? Let's connect

Support Group: Brain & Nervous System

Posted: Jun 8, 2024

Well, hello, fiesty 76. It's wonderful reading you message. I've been out of the loop, off-line,...

https://connect.mayoclinic.org/comment/333698/

Discussion: Assisted Living and DNR (Do Not Resuscitate)

Support Group: Caregivers

Posted: Feb 14, 2021

Hello - My story is strikingly similar to what you mention. I as well am a...

https://connect.mayoclinic.org/comment/666274/

Discussion: Recent LBD with Parkinsonism diagnosis

Support Group: Parkinson's Disease

Posted: Dec 29, 2021

Hi DanL @tunared - Welcome to the Connect community. I know you'd probably rather not be...

https://connect.mayoclinic.org/comment/323596/

Discussion: MCI: Trying to find our best path and what to do next

Support Group: Caregivers: Dementia

Posted: Oct 22, 2020

Hello: I can chime in from a patients point of view. I am a LBD with...

https://connect.mayoclinic.org/comment/616818/

Discussion: Lewy Body Dementia at age 51: Anyone else with early onset LBD?

Support Group: Caregivers: Dementia

Posted: Jul 15, 2021

My 65 yo husband (with a history of a previous MTBI 10 years ago) has been...

https://connect.mayoclinic.org/comment/1196232/

Discussion: What were the first dementia signs you noticed?

Support Group: Caregivers: Dementia

Posted: Dec 24, 2024

@becsbuddy, Where to begin? I thought I was burnt 2 a crisp back in February....how to...

https://connect.mayoclinic.org/comment/298421/

Discussion: Caregiver Burnout Warning

Support Group: Caregivers: Dementia

Posted: May 2, 2020

In my personal experience I find Family Practice Physicians and Neurologists may delay making a diagnosis...

https://connect.mayoclinic.org/comment/1297798/

Discussion: What were the first dementia signs you noticed?

Support Group: Caregivers: Dementia

Posted: May 5 8:19pm

My husband also did well with the neurologist’s ten minute cognitive tests. I persisted and had...

https://connect.mayoclinic.org/comment/1330389/

Discussion: Early stage memory loss and MCI lack of medical attention

Support Group: Caregivers: Dementia

Posted: Jun 19 8:41am

I have found out that neurologists like to always be in control of the visit. But...

https://connect.mayoclinic.org/comment/1306561/

Discussion: What were the first dementia signs you noticed?

Support Group: Caregivers: Dementia

Posted: May 18 3:04am

My 76 yr. old husband has a diagnosis of Alzheimer's. He's been losing ground for about...

https://connect.mayoclinic.org/comment/1310858/

Discussion: Vascular surgeon appt: What questions should I ask?

Support Group: Caregivers: Dementia

Posted: May 23 7:31am

@lynnrackliff I feel for you and can empathize. Has your husband ever been diagnosed with a...

https://connect.mayoclinic.org/comment/1306648/

Discussion: What are questions we should ask the neurologist?

Support Group: Caregivers: Dementia

Posted: May 18 7:58am

You have every right to be angry. I came to Mayo and have received another type...

https://connect.mayoclinic.org/comment/1329870/

Discussion: Early stage memory loss and MCI lack of medical attention

Support Group: Caregivers: Dementia

Posted: Jun 18 11:32am

He has a nuerologist for dementia and his primary is always helping him and me.

https://connect.mayoclinic.org/comment/1208087/

Discussion: Dealing with a Spouse with a “Mild Cognitive Impairment”

Support Group: Caregivers: Dementia

Posted: Jan 10 7:28am

@goodold, you may be interested in learning about the fascinating work of Dr. David Jones at...

https://connect.mayoclinic.org/comment/1117973/

Discussion: Caregiver sundowning

Support Group: Caregivers: Dementia

Posted: Aug 4, 2024

I agree that people are not seen often by neurologists. Ours was able to give my...

https://connect.mayoclinic.org/comment/908190/

Discussion: What should be expected of a neurologist treating Alzheimer’s?

Support Group: Caregivers: Dementia

Posted: Aug 5, 2023

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