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Brain Tumor Support Group

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Discussions (63)
Neurosurgeon for Glioblastoma resection
My father (53 M) has a Glioblastoma at the junction of the posterior body and splenium of corpus callosum. He had a biopsy at Brown...
Support Group: Brain Tumor
Last active: Feb 20, 2025
How to treat glioblastoma?
My boyfriend of 23 is dealing with glioblastoma and I am not sure what will happen.The doctors told him to do whatever he wishes to...
Support Group: Brain Tumor
Last active: Jul 11 2:39pm
CAR-T therapy for glioblastoma?
Alguien sabe si hay Cart para Glioblastoma grafo 4.Es mi única esperanza. Y no hay muchos ensayos clínicos avanzados.Llevo 4 años viva . Que suerte...
Support Group: Brain Tumor
Last active: Mar 28, 2025
Radiation with or without Temodar for Glioblastoma?
Hi Folks, I am a 3rd year medical student & the daughter of a father recently diagnosed with Glioblastoma. He has also been battling leukemia...
Support Group: Brain Tumor
Last active: Jun 1, 2020
My Husband's journey with Glioblastoma
I have been following discussions in this Brain Tumor group for several months and decided it was time to share my husband, Steve's, journey with...
Support Group: Brain Tumor
Last active: Jan 26 7:54am
Glioblastoma IDH:wildtype MGMT positive
Hello all! My 60 yr old husband was diagnosed in Dec 2025 with brain tumor which lead to a resection on Jan 2,2026. Thinking he...
Support Group: Brain Tumor
Last active: Mar 18 7:45pm
Glioblastoma Grade 4: An unexpected diagnosis
After thinking I had a sinus infection for 3 months, then the left side of my face fell & the Doctor thought I had Bells...
Support Group: Brain Tumor
Last active: May 27, 2023
Glioblastoma with gross total resection.
My husband, 54 years old. He had approx. 12 minute seizure on Sept. 10. They did a CT scan and said that they felt he...
Support Group: Brain Tumor
Last active: Feb 28 8:37pm
Glioblastoma Multiforme and Cognitive Loss
Has anyone experienced removal of a temporal lobe Glio with cognitive loss at surgery - not to recover cognitively, but better physically? Would like to...
Support Group: Brain Tumor
Last active: Mar 10, 2020
Glioblastoma: My husband's journey, what's yours?
My partner Bill was diagnosed with a glioblastoma on 9/11/23 after experiencing sudden cognitive issues headache for about 12 hours.No seizures.A trip to the ER...
Support Group: Brain Tumor
Last active: Mar 30, 2024
Glioblastoma (GBM) trials and therapeutic devices (Optune)
Allo, I'm looking for a page on GBM trials. I'm particulary interest in the Optune-Novocure TTFields device which is really hard to benefit in Quebec...
Support Group: Brain Tumor
Last active: Jun 6, 2025
Questions about glioblastoma resection, radiation afterward
Hi. My husband was dx in Nov 2015 with grade IV glioblastoma. He had a biopsy but never a resection. (The tumor was in the...
Support Group: Brain Tumor
Last active: Apr 11, 2023
Glioblastoma treatment: What helps belching & hiccups?
In August of this year, Harry was diagnosed with Glioblastoma after we thought he was having a stroke. They were able to remove 90% of...
Support Group: Brain Tumor
Last active: Nov 18, 2024
Glioblastoma cancer claims my wife.
My wife recently passed away after 17 months fighting Glioblastoma cancer.I felt helpless not being able to treat and cure the cancer.After 54 years of...
Support Group: Brain Tumor
Last active: May 23, 2025
My Husband's diagnosis of glioblastoma grade 4
Husband was just diagnosed Jan 1rst after having seizures past couple months. Was hospitalized and mri showed tumor in left temporal lobe. Had surgery and...
Support Group: Brain Tumor
Last active: Mar 16, 2024
Treated for glioblastoma: Will dizziness & confusion get better?
My mom was diagnosed last year with glioblastoma had surgery done removed it on the left side.. did chemo for 6 months and 3 weeks...
Support Group: Brain Tumor
Last active: Apr 24 10:37pm
My mother has been diagnosed with glioblastoma.
My mother’s name is Maria, she is 53 years old. Until November 12, 2025, she worked as an HR specialist. On that day, she came...
Support Group: Brain Tumor
Last active: Jun 8 5:50pm
Glioblastoma (GBM) treatment with Avastin, hope on road to recovery
My wife is into her 3rd year with a GBM wildtype she just started her 4 treatments of avastin after her 2nd treatment she had...
Support Group: Brain Tumor
Last active: Jun 13 7:51am
Anyone in the PARPA-293-002 clinical trial for recurring Glioblastoma?
Has anyone experienced the PARPA-293-002 trial for recurring Glioblastoma?
Support Group: Brain Tumor
Last active: Oct 27, 2024