Support Groups

Brain Tumor Support Group

Public Support Group
300 total results
Discussions (17)
Gamma knife for meningiomas
Greetings - do any followers of this group have any experience with the use of the "gamma knife" when arresting the growth of benign meningiomas?...
Support Group: Brain Tumor
Last active: Jun 7, 2024
Gamma knife and nerve damage
I had gamma knife in January 2023 for 3 tumors, one being a schwannoma. In November I started experiencing numbness in my face on the...
Support Group: Brain Tumor
Last active: Aug 22, 2024
Swelling following gamma knife procedure for meninigioma
A family member had gamma knife radiation at Mayo for a brain meningioma in August and recently had neuro episodes suspected to be post procedure...
Support Group: Brain Tumor
Last active: Jul 28, 2019
Anyone having Gamma Knife for parafalcine (parafalx) meningioma?
I will be having Gamma Knife for a parafalcine meningioma, likely this summer (2024). My tumour was an incidental finding on an MRI for follow-up...
Support Group: Brain Tumor
Last active: Jun 22, 2024
Gamma Knife for Meningioma & dAVF in ONE treatment session
Has anyone in this group experienced Gamma Knife for treating a meningioma and a dural arteriovenous fistula (dAVF) in ONE treatment session? If so, what...
Support Group: Brain Tumor
Last active: May 1, 2024
Choosing how to handle a regrowth of a meningioma gamma knife/surgery
Original larger meningioma removed surgically 2019 - smaller tumors have grown since (4) and they have been removed by gamma knife. Now a previous growth...
Support Group: Brain Tumor
Last active: Apr 11, 2023
Gamma knife treatment in 2018 for meningioma around the optic area
Like I said I had the gamma knife treatment in aug 2018 and was told the tumor would shrink a little every year. I had...
Support Group: Brain Tumor
Last active: Aug 10, 2020
Lump by screw from gamma knife surgery, anyone else?
I have a lump where the screw was put in for my gamma surgery. It has become painful and I am not sure if I...
Support Group: Brain Tumor
Last active: May 15, 2020
What were your experiences with the head frame for Gamma Knife?
I was diagnosed with a Brain Tumor in March, they think it’s more likely a Meningioma but they aren’t ruling out Acoustic Neuroma. I saw...
Support Group: Brain Tumor
Last active: Dec 15, 2020
Has anyone had Gamma Knife for a glomus jugulare benign tumor?
I had Gamma Knife in January 2022. I am doing very well. My tumor had not shrunk at this point. I was told it could...
Support Group: Head & Neck Cancer
Last active: Jan 22, 2023
Stereotactic Radiosurgery Surgery (Gamma or Cyberknife) for Meningioma
I will be having Gamma Knife Radio Surgery for a meningioma that is growing. Have any of you had this procedure and does it work?...
Support Group: Brain Tumor
Last active: Jan 6 2:22pm
My sister Jill's brain tumor treatment plan at Mayo Clinic
Wanted to reach out to all of you who have been so responsive and concerned about my sister Jill. She met with all 3 Docs...
Support Group: Brain Tumor
Last active: Aug 21, 2017
Neurosurgeon visit: Should I get another appointment?
Should I get another apt?Discovered I had a 12 mm meningioma after MD ordered MRI for inner ear problem.I went to first apt yesterday after...
Support Group: Brain Tumor
Last active: Nov 30, 2023
Multiple meningiomas in past, but now my new tumor is GBM4
Over the past 22 years I have been diagnosed and had surgery for multiple meningiomas. The first surgery was 22 years ago as my tumor...
Support Group: Brain Tumor
Last active: Aug 5, 2024
Watch and wait is over: meningioma has grown
Had my 4th MRI last Friday and yesterday found out my tumor has grown some more. Dr is recommending removal before it grows too much...
Support Group: Brain Tumor
Last active: Nov 1, 2018
Squamous cell carcinoma !! Any Hope!!
My father, an 81 year old, was diagnosed with non small cell lung cancer (squamous cell carcinoma) back in 2015. He had a lobectomy of...
Support Group: Brain Tumor
Last active: Jul 12, 2017