Brain Tumor Support Group

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Comments (270)

My husband was diagnosed at first with meningioma. A month later at his neurosurgeon’s follow-up appointment...

https://connect.mayoclinic.org/comment/1575322/

Discussion: Share Your Brain Tumor type & Years since Diagnosis

Support Group: Brain Tumor

Posted: May 15 12:48pm

You can reach 85 years or more!! 🙏 need lots PPF (PATIENCE PRESEVERANCE and FAITH).. You...

https://connect.mayoclinic.org/comment/1339475/

Discussion: Glioblastoma stage 4 -my story so far

Support Group: Brain Tumor

Posted: Jul 2, 2025

Hi, @tanyabaust. Welcome to Mayo Clinic Connect. Thanks for sharing about your diagnosis and your treatment...

https://connect.mayoclinic.org/comment/214955/

Discussion: Glioblastoma Multiforme and Cognitive Loss

Support Group: Brain Tumor

Posted: Jul 14, 2019

You might want to check out Dr. Linda Liau at UCLA. She has received recognition and...

https://connect.mayoclinic.org/comment/1462719/

Discussion: What are the chances of sruvival beyond 24 months with Glioblastoma?

Support Group: Brain Tumor

Posted: Dec 17, 2025

@handyl1808 Thank You for that update, with the tumor i had removed it was 1 step...

https://connect.mayoclinic.org/comment/1519667/

Discussion: My mother has been diagnosed with glioblastoma.

Support Group: Brain Tumor

Posted: Mar 4 3:16pm

My very active 71 year old husband was diagnosed with an inoperable glioblastoma (left frontal, also...

https://connect.mayoclinic.org/comment/901220/

Discussion: Glioblastoma Grade 4: How do handle family conversations, sharing?

Support Group: Brain Tumor

Posted: Jul 24, 2023

Hello, I went through the same issue. I was given seizure medication to take after my...

https://connect.mayoclinic.org/comment/1441010/

Discussion: How do I handle the mood changes caused by glioblastoma?

Support Group: Brain Tumor

Posted: Nov 17, 2025

@tpq, it is hard to hear the news of a diagnosis with limited time. Your doctor...

https://connect.mayoclinic.org/comment/1438867/

Discussion: What are the chances of sruvival beyond 24 months with Glioblastoma?

Support Group: Brain Tumor

Posted: Nov 14, 2025

Welcome @rosez. I feel your sadness. I've added your message to the Caregivers group (https://connect.mayoclinic.org/group/caregivers/) as...

https://connect.mayoclinic.org/comment/310060/

Discussion: So sad: Husband has glioma and I feel he is fading away

Support Group: Brain Tumor

Posted: May 9, 2020

Why is the surgeon asking this question? There should be a neuro oncologist involved plus a...

https://connect.mayoclinic.org/comment/1001294/

Discussion: Radiation for 70 yr old (glioblastomas grade 4)?

Support Group: Brain Tumor

Posted: Jan 21, 2024

I’m 59 years old, and I have glioblastoma. It was very hard to learn that I...

https://connect.mayoclinic.org/comment/1478983/

Discussion: Glioblastoma with gross total resection.

Support Group: Brain Tumor

Posted: Jan 10 1:50pm

In December, my husband was diagnosed with a butterfly frontal Glioblastoma following a seizure while driving....

https://connect.mayoclinic.org/comment/1514702/

Discussion: My dad has been diagnosed with stage 4 glioblastoma inoperable

Support Group: Brain Tumor

Posted: Feb 25 9:33pm

Hello, I was diagnosed with glioblastoma brain cancer in September 2024. After receiving an operation September...

https://connect.mayoclinic.org/comment/1240788/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Feb 19, 2025

@alibit11, I'd like to add my welcome. I'm tagging fellow members like @kara81 @otis123 @nancyhafer @kpickowitz...

https://connect.mayoclinic.org/comment/1250611/

Discussion: How to help my spouse with stage 4 Glioblastoma while being so sad?

Support Group: Caregivers

Posted: Mar 4, 2025

Susan, I am so sorry to hear about your friend Jane's diagnosis. Glioblastoma comes without warning...

https://connect.mayoclinic.org/comment/819408/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Mar 1, 2023

My wife was diagnosed with glioblastoma, stage four, in 2013. We didn’t see it as a...

https://connect.mayoclinic.org/comment/1267880/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Mar 27, 2025

Welcome to the group here at Mayo connect, just going to put this out there, I...

https://connect.mayoclinic.org/comment/1462183/

Discussion: How to treat glioblastoma?

Support Group: Brain Tumor

Posted: Dec 16, 2025

Hi Lori, Thank you for your lovely response. Deborah went to be with Jesus on 15th...

https://connect.mayoclinic.org/comment/819426/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Mar 1, 2023

My husband has Glioblastoma first diagnosed in 10/2019. We were looking into clinical trials at Duke...

https://connect.mayoclinic.org/comment/334861/

Discussion: Lomustine experience

Support Group: Brain Tumor

Posted: Feb 12, 2021

If I were you, I would try to find some kind of Clinical Trial as well....

https://connect.mayoclinic.org/comment/1335004/

Discussion: Offering hope: Dad's journey with Glioblastoma stage 4

Support Group: Brain Tumor

Posted: Jun 25, 2025

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