Brain Tumor Support Group

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Comments (270)

My husband has been on the Optune treatment for 10 months. Although wearing the device has...

https://connect.mayoclinic.org/comment/1306736/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 18, 2025

Boa tarde Gostaria de saber qual é a Rebecca Devine no facebook, porque há muitas...... Tenho...

https://connect.mayoclinic.org/comment/1277772/

Discussion: Anyone have glioblastoma, IDH Wild-type, WHO Grade 4?

Support Group: Brain Tumor

Posted: Apr 9, 2025

After my husband underwent 6 weeks of daily radiation and chemo his MRI on 1/3 revealed...

https://connect.mayoclinic.org/comment/1215202/

Discussion: Offering hope: Dad's journey with Glioblastoma stage 4

Support Group: Brain Tumor

Posted: Jan 17, 2025

@colleenyoung hello thanks a lot for information.I am a nephrologist in India . My mom is...

https://connect.mayoclinic.org/comment/1589921/

Discussion: Plz guide regarding new therapies for glioblastoma that can help

Support Group: Brain Tumor

Posted: Jun 3 1:46pm

@amherst, I'd like to also add my welcome and introduce you to other members who have...

https://connect.mayoclinic.org/comment/266728/

Discussion: Recurrent GBM and treatment options?

Support Group: Brain Tumor

Posted: Jul 29, 2019

I am at full dose 60 mg daily and feel good. Here is a study from...

https://connect.mayoclinic.org/comment/961040/

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Nov 8, 2023

I'm also not getting chemo until after radiation treatment. From what I read in the patient...

https://connect.mayoclinic.org/comment/1338068/

Discussion: Glioblastoma stage 4 -my story so far

Support Group: Brain Tumor

Posted: Jun 29, 2025

Hey My history. A Craniotomy in Jan 2024 for the Debulking of glioblastoma(IV). Since 2024 to...

https://connect.mayoclinic.org/comment/1644412/

Discussion: Can MRI show if changes are normal or if brain lesion's growing?

Support Group: Brain Tumor

Posted: 2 days ago

@wisco50 How old is your grandaughter? My son was 24 it was very rare astrocytoma glioblastoma...

https://connect.mayoclinic.org/comment/1470396/

Discussion: How to treat glioblastoma?

Support Group: Brain Tumor

Posted: Dec 29, 2025

It's a Grade 4 or Tier 1 glioblastoma. I think the chemo and radiation is for...

https://connect.mayoclinic.org/comment/1306115/

Discussion: High grade glioma: waiting for remainder of molecular testing

Support Group: Brain Tumor

Posted: May 17, 2025

Welcome to Connect, @barbaraak I'd like to bring others into this discussion, like @lmp1 @myminnie @spangles...

https://connect.mayoclinic.org/comment/199417/

Discussion: 2nd year of Temodar for GBM: Should I expect worse side effects?

Support Group: Brain Tumor

Posted: May 9, 2018

His latest MRI of 8/5/2021 shows progression of the cancer. There is one more chemo that...

https://connect.mayoclinic.org/comment/625511/

Discussion: My Husband's journey with Glioblastoma

Support Group: Brain Tumor

Posted: Aug 11, 2021

Adrian092, What would the Houston Methodist Hospital offer that maybe the MD Anderson Cancer Center in...

https://connect.mayoclinic.org/comment/1246930/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Feb 27, 2025

I had radiation treatments for 33 days along with taking daily doses of chemo pills And...

https://connect.mayoclinic.org/comment/270039/

Discussion: Surgery or no surgery: possible low-grade glioma?

Support Group: Brain Tumor

Posted: Jul 18, 2020

Thank you for asking @colleenyoung My daughter has just finished radiation and chemo. She will have...

https://connect.mayoclinic.org/comment/154063/

Discussion: Pleomorphic xanthoastrocytoma tumor (Pxa): help

Support Group: Brain Tumor

Posted: Dec 18, 2017

Hi folks, I was wondering if some of you or your loved ones have had experience...

https://connect.mayoclinic.org/comment/246585/

Discussion: Glioblastoma (GBM) trials and therapeutic devices (Optune)

Support Group: Brain Tumor

Posted: Jun 2, 2020

I had surgery on 9-27-2018 & was diagnosed 10-8-2018 with glioblastoma grade 4. I believe my...

https://connect.mayoclinic.org/comment/239968/

Discussion: Glioblastoma Grade 4: An unexpected diagnosis

Support Group: Brain Tumor

Posted: Feb 5, 2019

I am a 58 year old women who was diagnosed with glioblastoma in 2015. I was...

https://connect.mayoclinic.org/comment/821673/

Discussion: Friend has Brain Cancer Glioblastoma: What are the next steps?

Support Group: Brain Tumor

Posted: Mar 6, 2023

Hello all, I'm going through the same issues with glioblastoma. Let through surgery/radiation/chemo therapy, Now I'm...

https://connect.mayoclinic.org/comment/1427160/

Discussion: Treated for glioblastoma: Will dizziness & confusion get better?

Support Group: Brain Tumor

Posted: Oct 30, 2025

I have just been diagnosed with a large glioblastoma that is also in two other places...

https://connect.mayoclinic.org/comment/1134523/

Discussion: My guy has Glioblastoma: how to help fulfill his legacy?

Support Group: Brain Tumor

Posted: Sep 1, 2024

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