Anyone living with Essential Thrombocythemia with JAK2?

@mib
Have a problem with chapped lips. Use lots of Vaseline.

@mib. I just want to make sure I’m understanding your situation. You have a bridge with one of the teeth under a crown where there have been some changes to the tooth. Was this the root area seen on a dental X-ray?

You mentioned that there is some resorption of the tooth. Resorption is a process where the body breaks down and absorbs the structure of a tooth. may be influenced by number of factors such as inflammation or possibly medications.

Have you talked to your hematologist and your dentist about the possible link with hydroxy? What has your dentist suggested regarding the bridge?

Hello, I am doing good no real side effects just take my Hydrae daily and continue to enjoy life.

I have been on HD for 2 months 500 mg once a day and it has dropped my count from over a million to 650k! My side effects are mainly extreme tiredness and achy ness. I hope they will cut me back soon on the HD.

Hi, MariaAlive! I also see a naturopath oncologist and an MPN heme doc. My PCP is a functional medicine doc, so all 3 work together and are in agreement on my care.

72 y/o female, ET wJAK2 for 2 years holding in the high 600s only taking 81 mg aspirin, no HU.

I’ve been on 4-hour time release Resveratrol by Reserveage for probably close to 10 years now.
They’ve said not to use a cheaper brand because of fillers. Also on quercetin and curcumin, Vit D3 w/K2, Vit C, and a B-complex w/Biotin.
Work w/your Docs, talk about your average diet and exercise, and how often you are outside getting fresh air and sunshine. I’m in MI where skies are grey all winter long. Without supplemental Vit D, my levels easily fall below 35. To stay close to 80, I need to take 10,000 IU/day. But here’s the thing, work with your Docs: If I go to Florida for weeks at a time and I’m outdoors every day I stop taking the vitamin D or my levels can approach 100 or more. Delicate balance!

It takes a while to figure it all out. Supplements work slowly, so be patient with your Docs and yourself. This is something we LIVE with. It’s going to be ok!

Blessings for a healthy new year!
Sherry