Blood Cancers & Disorders Support Group

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Comment

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:58am

Comment

Apologies to all my last post should read the two mutations are jak 2 and Calr

https://connect.mayoclinic.org/comment/1288840/

Discussion: How long you can live taking Hydrea (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 24 10:20am

Comment

I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...

https://connect.mayoclinic.org/comment/1163233/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Comment

I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found...

https://connect.mayoclinic.org/comment/1140166/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2024

Comment

Yes, I have been on Peg since Nov 2022 and started at 45mcg/ wk and moved...

https://connect.mayoclinic.org/comment/1106156/

Discussion: Hydroxyurea vs peginterferon side effect impact

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

Comment

I have had ET for 10 years and avoided a bone marrow biopsy completely. The fact...

https://connect.mayoclinic.org/comment/1088943/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

I have polycythemia vera also a jak 2. If this is your diagnosis there is no...

https://connect.mayoclinic.org/comment/1087160/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024

Comment

I am JAK 2 positive with PV and also take the hydroxyurea and one baby aspirin....

https://connect.mayoclinic.org/comment/1086544/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2024

Comment

do you have Jak 2 mutation?

https://connect.mayoclinic.org/comment/1023588/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Feb 27, 2024

Comment

So you had these tests JAK2V617F,JAK2Exon12, BCR ABL-MPL-CALR?which one was positive? I don’t know the medical...

https://connect.mayoclinic.org/comment/1022951/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 26, 2024