Blood Cancers & Disorders Support Group

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Comment

Hi, I have Essential Thrombocythemia with JAK 2 mutation and perhaps these folks looking for answers...

https://connect.mayoclinic.org/comment/194318/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2019

Comment

@jsslmt53, welcome. We have many members who are living with Essential Thrombocythemia and talk about JAK2...

https://connect.mayoclinic.org/comment/782514/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 8, 2022

Comment

Welcome to Connect @krag1949 As owner of a greenhouse, this is your super busy season! I'm...

https://connect.mayoclinic.org/comment/1572903/

Discussion: Hydrea and joint pain

Support Group: Blood Cancers & Disorders

Posted: May 12 10:06am

Comment

Hi Lynn, welcome. Both @nohrt4me @huronshores have ET and have had joint replacement therapies. They may...

https://connect.mayoclinic.org/comment/851903/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 30, 2023

Comment

On your blood chemistry report are your platelets elevated, have they been rising over a few...

https://connect.mayoclinic.org/comment/1507287/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 16 11:39am

Comment

Today I saw the hem/onc at UCLA. I will be having a guided Bone Marrow Biopsy...

https://connect.mayoclinic.org/comment/1319791/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2025

Comment

The way I understand it MPN specialists are hematologists with sub speciality of MPN’s such as...

https://connect.mayoclinic.org/comment/797781/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 16, 2023

Comment

Hi @shenriq According to the NIH there are several patients with essential thrombocythemia that complain of...

https://connect.mayoclinic.org/comment/337924/

Discussion: ET symptom of neuropathy

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2021

Comment

I have essential thrombocythemia, a liver mutation resulting in overproduction of platelets. My B is off...

https://connect.mayoclinic.org/comment/198919/

Discussion: High Levels of Vitamin B12 and Ferritin: Any pointers?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

Comment

@lydaneedsadvice, You mentioned you have your next CBC on June 28th. Hopefully, your hematologist can shed...

https://connect.mayoclinic.org/comment/265149/

Discussion: Persistent immature grans/left shift on CBCs

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2019

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