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Blood Cancers & Disorders Support Group

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854 total results
Discussion
How to handle Extreme Tiredness?
I was diagnosed wirh CLL about 6 months ago. Have had some bouts of extreme tiredness where I could barely raise up off tge bed....
Last active: May 4, 2023
Discussion
Richter's Syndrome: Is anyone else dealing with this disease?
I have recently been diagnosed with Richter's Syndrome- my CLL/SLL which I have had since 2008 has now undergone a "transformation" to Richter's; which is...
Last active: Apr 19 8:56am
Discussion
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Last active: Aug 13, 2023
Discussion
Finding the right cancer care team
Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...
Last active: Mar 6, 2024
Discussion
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Last active: Dec 11, 2023
Discussion
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
Can anyone advise about what insurance best covers immunotherapies?
I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage...
Last active: May 5 12:01pm
Discussion
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: Jan 3 3:27pm
Discussion
Has anyone lost fingers/toes to B cell antibodies impacting Platelets
I had all my fingers & one toe amputated due to B cells creating antibodies that impacted my platelets & stopped my capillaries from my...
Last active: Jun 19 11:08am
Discussion
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...
Last active: Mar 12, 2024