Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
831 total results
Discussion
Sudden enlarged lymph nodes
I have CLL and have been just watching for about 6 months and all of a sudden in the last week or so all of...
Last active: Aug 13, 2023
Discussion
Finding the right cancer care team
Hello,I will be going to my 2nd visit with the hematologist/oncologist I was referred to by my PCP. My question is how did other people...
Last active: Mar 6, 2024
Discussion
Diagnosed with small lymphocytic lymphoma (SLL)
I was just diagnosed with early stage small B cell SLL and am asymptomatic. My oncologist has said we will just watch and wait. I...
Last active: Dec 11, 2023
Discussion
Can anyone advise about what insurance best covers immunotherapies?
I'm about to have a career transition. Into what, I don't yet know. I want to choose something that will provide the best possible coverage...
Last active: May 5 12:01pm
Discussion
I have Myelodysplastic Syndrome (MDS) spawned from ITP
I Have Myelodysplastic Syndrome (MDS) that spawned from Idiopathic Thrombocytopenic Purpura (ITP) which spawned from original diagnosis of Chronic Lymphocytic Leukemia (CLL). Now I don't...
Last active: Apr 27, 2016
Discussion
Marginal zone lymphoma & chronic lymphocytic leukemia, anyone?
Recently diagnosed with MZL and CLL. I don't know which of the MZL types I have. Visiting Mayo in two weeks for second opinion. Already...
Last active: Jan 3 3:27pm
Discussion
Has anyone lost fingers/toes to B cell antibodies impacting Platelets
I had all my fingers & one toe amputated due to B cells creating antibodies that impacted my platelets & stopped my capillaries from my...
Last active: Jun 19 11:08am
Discussion
Hairy Cell Leukemia: What were your symptoms before treatment?
Hi, I just found this website via a webinar on the HCL Foundation website. I've learned a lot since my diagnosis via a blood test...
Last active: Mar 12, 2024
Discussion
Haptoglobin RBC major issues
My rbc labs getting worse. Haptoglobin is now 2.7 when low is 65!!!! I have felt I'm highly anemic. Docs don't see it. I have...
Last active: Sep 11, 2023
Discussion
Iron Tablets! And learning about fatigue and to pace myself
Hello Lori and all of you, sorry to have been gone so long, lost my password and finally gave up looking for it. I have...
Last active: Jul 27, 2023