Blood Cancers & Disorders Support Group

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Comment

Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...

https://connect.mayoclinic.org/comment/738621/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Aug 17, 2022

Comment

As you might remember, I have Cancer>MM>Amyloidosis>Gelsolin, among other things. As you know, Gelsolin is a...

https://connect.mayoclinic.org/comment/621871/

Discussion: Want to help Mayo Clinic improve our Multiple Myeloma website?

Support Group: Blood Cancers & Disorders

Posted: Jul 31, 2021

Comment

Hi Patrick! I was diagnosed with Amyloidosis in March of this year, however I do not...

https://connect.mayoclinic.org/comment/282774/

Discussion: Does anyone have amyloidosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2019

Comment

@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...

https://connect.mayoclinic.org/comment/906775/

Discussion: Looking for advice: Could this be MGUS, because of low m-spike?

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2023

Comment

Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...

https://connect.mayoclinic.org/comment/104684/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2016

Comment

Labs were done prior to the office visit Repeat labs and follow-up office visit in 3...

https://connect.mayoclinic.org/comment/753810/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2022

Comment

Hi @jan44, I'm sure @vmarra would appreciate connecting with you. I see AL amyloidosis is a...

https://connect.mayoclinic.org/comment/775150/

Discussion: Recently diagnosed with AL Amyloidosis: Any advice?

Support Group: Blood Cancers & Disorders

Posted: Nov 19, 2022

Comment

Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...

https://connect.mayoclinic.org/comment/169956/

Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2017

Comment

I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...

https://connect.mayoclinic.org/comment/1158835/

Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.

Support Group: Blood Cancers & Disorders

Posted: Oct 18 8:14am

Comment

I have MGUS, diagnosed about 4 years ago, now I have also been diagnosed with Amyloidosis....

https://connect.mayoclinic.org/comment/1100049/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 11:42pm