Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

342 total results

Comment

Thank you for recommending a consult with a a Mayo doctor specializing in both WM and...

https://connect.mayoclinic.org/comment/687250/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Comment

Has anyone diagnosed with type AL Amyloidosis had success after treatment with Darzalex? If so, how...

https://connect.mayoclinic.org/comment/104724/

Discussion: Current diagnosis is Amyloidosis and multiple myeloma

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2018

Comment

I also diagnosis with ATTR amyloidosis. Its a new desease in South Africa an medicenes for...

https://connect.mayoclinic.org/comment/1301488/

Discussion: Amyloidosis and low SpO2

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

Comment

MM but last year's fat pad biopsy showed no amyloidosis. However my doc wants to do...

https://connect.mayoclinic.org/comment/1511119/

Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Feb 21 10:24am

Comment

Just read about a support group for lymphoma patients, and wondering if I could be connected...

https://connect.mayoclinic.org/comment/196639/

Discussion: Support groups for lymphoma patients

Support Group: Blood Cancers & Disorders

Posted: Apr 19, 2018

Comment

Good morning, @pices and welcome to Mayo Clinic Connect. We have some current members in our...

https://connect.mayoclinic.org/comment/722050/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Jun 29, 2022

Comment

Julie, I moved your message to the Cancer group where you can meet others who may...

https://connect.mayoclinic.org/comment/113902/

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Sep 8, 2016

Comment

Hi @patio29dadio, welcome. You're facing some big decisions. Allow me to bring in fellow members who...

https://connect.mayoclinic.org/comment/687154/

Discussion: Advice for Amyloidosis with Waldenstrom's macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2022

Comment

I had lab work for Amyloidosis and everything was good. Does that mean I dont have...

https://connect.mayoclinic.org/comment/1185293/

Discussion: Diagnosing amyloidosis: Why monitor (PYP scan) instead of biopsy?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2024

Comment

@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...

https://connect.mayoclinic.org/comment/1041665/

Discussion: Abnormal bloodwork questions

Support Group: Blood Cancers & Disorders

Posted: Mar 28, 2024