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Blood Cancers & Disorders Support Group

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1,545 total results
Discussion
MGUS diet: Any tips on food to enjoy or prevent progression?
Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more...
Last active: Sep 3 4:57pm
Discussion
MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
The above was found in his blood serum test but follow-up 24 hr urine test showed only 2 free Kappas. Has anyone had experience with...
Last active: Aug 3 1:59pm
Discussion
How high has anyone seen Lambda free light chain go with Mgus?
Going in Sept 3 for Bone marrow test .. symptom free but with accidentally finding of Lambda free light chain serum test 1200.6 with Kappa...
Last active: Sep 22 12:10pm
Discussion
MGUS: Should I be concerned that my eGFR dropped from 77 to 57
I was diagnosed with MGUS 2 years ago when I was being tested for some sudden heart issues. I have testing every 6 months. I...
Last active: Oct 25 3:37pm
Discussion
MGUS monitoring: What tests do you have done regularly?
I was diagnosed with MGUS about a year ago. They have been screening with labs. I’ve noticed some MGusers have bone marrow tests and some...
Last active: Dec 23, 2022
Discussion
Should I be worried about my MGUS diagnosis and my M Spike rising?
I’m a 33 year old male and I was diagnosed with MGUS at the beginning of this year after recurring fevers and body aches the...
Last active: Feb 27 11:51pm
Discussion
Multiple myeloma lytic lesions pelvic area. What treatments?
Has anyone gone from mgus to multiple myeloma in pelvic area? Radiologist found problem in pelvic area, only on skeletal survey. Have to get an...
Last active: Jun 24, 2022
Discussion
Want to talk about Multiple Myeloma: Anyone else?
Asking anyone who is going thru this experience to share any pro's or con's of this disease. As of now I'm in MGUS, will find...
Last active: Nov 10 6:24pm
Discussion
Atrophic thyroid, has anyone dealt with this?
This just was discovered in a Ct scan for my case of lung sarcoidosis (I also have mgus). My appointment with an endocrinologist is two...
Last active: May 1, 2023
Discussion
Lymphedema and Waldenstroms Macroglobulinemia
Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...
Last active: Nov 8 9:09am