Blood Cancers & Disorders Support Group

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Comment

HALFWAY TREATMENT? I saw the hematologist a few days ago. He diagnosed me with "MDS with...

https://connect.mayoclinic.org/comment/1325787/

Discussion: Living with MDS (Myelodyplastic Syndromes)

Support Group: Blood Cancers & Disorders

Posted: Jun 12, 2025

Comment

It does appear that Vidaza is no longer working. However, my doctor started a high dose...

https://connect.mayoclinic.org/comment/1234512/

Discussion: Diagnosed with MDS: What is Paradox Effect with azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2025

Comment

I am 76…been on Vidaza for 40 cycles…Hemoglobin has been around 13. Good health to you...

https://connect.mayoclinic.org/comment/1356305/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Jul 25, 2025

Comment

My husband has MDS. After several cycles of vidaza he was experiencing platelet counts in the...

https://connect.mayoclinic.org/comment/1090187/

Discussion: Has anyone had a low platelet count of just 1?

Support Group: Blood Cancers & Disorders

Posted: Jun 20, 2024

Comment

My first shots resulted in severe vomiting and a trip to the er. I was told...

https://connect.mayoclinic.org/comment/1273485/

Discussion: I'm about to begin treatments with Vidaza, what should I know?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2025

Comment

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every...

https://connect.mayoclinic.org/comment/1302372/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 12, 2025

Comment

Welcome to Connect, @pinch. It looks like your mom was newly diagnosed with CMML. (Chronic myelomonocytic...

https://connect.mayoclinic.org/comment/1182559/

Discussion: What treatment options for CMML2 with no detected mutations ?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Comment

Hello @teammeadows. You mentioned a few weeks ago that you were about to start a round...

https://connect.mayoclinic.org/comment/221010/

Discussion: Leukemia CMML-2

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2018

Comment

@shoch1957 My husband was on Reblozyl when first diagnosed MDS . It only worked for him...

https://connect.mayoclinic.org/comment/1463904/

Discussion: Recently diagnosed with MDS with anemia and would like to connect

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2025

Comment

Hi @justmeb5 Recently, in another discussion you’d asked about Vidaza (Azacitidine) and if there were other...

https://connect.mayoclinic.org/comment/1301625/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2025

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