Blood Cancers & Disorders Support Group

Diagnosed with ET with JAK2 mutation June 2025. Started hydroxyurea and low dose aspirin. Platelets were 393 last labs. I normally take blood pressure at...

I was recently diagnosed with ET, JAK2 mutation. Currently taking 500mg Hydrea and low dose aspirin. Question: Does anyone know how long you can live...

The meeting reported on new developments in JAK2 inhibitors and the shift to tracking the allele burden in addition to tracking just hematocrit. https://mailchi.mp/e3b49744f1a5/new-developments-in-mpn-research-10612935?e=2d979fc2d3

Any recommendations for ongoing mild headaches since taking Hydroxyurea (500 mg per day). Trying not to take more drugs Have ET (Jak2) diagnosed August 2022...

Is anyone on Pegasys Interferon Alpha -A instead of Hydroxyurea? My doctor switched me after a little over a year on the HU because along...

I have essential thrombocytosis with CALR exon 9 mutation, no JAK2. I've been taking 500 mg hydroxyurea every other day for 2 1/2 years. About...

Hello,Newly diagnosed with Jak2 ET. Started Hydrea and 81 mg aspirin. Very low iron levels.Has anyone come across a specific diet recommendation to accompany this...

I just got diagnosed today with ET. My platelets have been high for years and 6 years ago I learned I have a Jak2 mutation....

Diagnosed with PV with JAK2 mutation In November. Did not do well on Hydroxyurea. I just started BESREMi at 100mg every 2 weeks. I have...

I am ET/Jak2 — 72 years oldDiagnosed July 2024HU 500mg dailyAre the following symptoms from the HU or ET itself:Lightheaded (feel a bit unbalanced/dizzyBrain fogItchyI...