Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

146 total results

Comment

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Comment

@zeedee1, see these related discussions: - Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?https://connect.mayoclinic.org/discussion/waldrenstrom-macroglobulinemia/ - How are...

https://connect.mayoclinic.org/comment/1577592/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: May 18 2:20pm

Comment

I am 73 and am positive for Waldenstrom’s Macroglobulinemia, MYD88 positive, CXCR4 negative. In addition, I...

https://connect.mayoclinic.org/comment/1518410/

Discussion: Anyone diagnosed with both myelofibrosis and Waldenstroms lymphoma?

Support Group: Blood Cancers & Disorders

Posted: Mar 3 8:55am

Comment

Hi @glueski There are several members here who also have been diagnosed with Waldenstroms Macroglobulemia. A...

https://connect.mayoclinic.org/comment/1526644/

Discussion: How are you managing Brukinsa side effects?

Support Group: Blood Cancers & Disorders

Posted: Mar 14 10:22am

Comment

Yesterday I was diagnosed with Waldenstrom's macroglobulinemia; I have the MYD88 wild type. My primary symptom...

https://connect.mayoclinic.org/comment/1537473/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 28 5:16pm

Comment

My husband has been diagnosed with an unusual variant of WM. I am not sure if...

https://connect.mayoclinic.org/comment/1538064/

Discussion: Waldenstrom macroglobulinemia (WM): Deciding treatment options

Support Group: Blood Cancers & Disorders

Posted: Mar 29 1:21pm

Comment

Since everyone responds differently, I highly recommend joining the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) - either...

https://connect.mayoclinic.org/comment/1074361/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: May 25, 2024

Comment

@vgdmayo Thanks to @loribmt for tagging me in this conversation. OHSU, going to their website, gave...

https://connect.mayoclinic.org/comment/1042904/

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Comment

Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...

https://connect.mayoclinic.org/comment/1026606/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

1
…
3
4
5
6
7
…
14