Blood Cancers & Disorders Support Group

I recently came across a research study that indicated a connection between essential throbocythemia (ET) with Jak2 mutation and endometerial cancer (EC), and wonder if...

42 yo female with platelet count at 478. Jak2 positive. Bone marrow biopsy recently done and confirmed. Started aspirin regimen today. I can't say I...

Just told that I have a Jak 2 mutation. Anyone else been thru this ?

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

Does anyone know if there is a link between Rheumatoid Arthritis and ET? Is one more prone to RA with a JAK2 mutation?

I am PV JAK2 and live at an altitude of 6000 feet. Could this altitude harm my condition? What altitude should I avoid?

I was diagnosed with PV in March. When my hematocrit leveled off at around 44 after 10 weeks of phlebotomy, my hematologist put me on...

I have ET and JAK2 mutation. Is it ok to take B12 for the tingling in my feet?

While I know JAK2, TET2, CALR, etc. are the most common genetic mutations in PV, does anyone else have it with the HFE gene (with...

Diagnosed with ET with JAK2 mutation June 2025. Started hydroxyurea and low dose aspirin. Platelets were 393 last labs. I normally take blood pressure at...