Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
706 total results
Discussion
Concerned: CLL in remission, but feel lousy, what to do?
I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...
Last active: Jan 25, 2023
Discussion
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023
Discussion
Using pulsating electro-magnetic fields as an adjunct in treating CLL
I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...
Last active: Dec 18, 2018
Discussion
Had CLL since 1996 & Now NETs-Anyone Else?
I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...
Last active: Aug 27, 2023
Discussion
Is possible to know how long ago I got CLL?
I am newly diagnosed with CLL. I am wondering if it is possible to get an idea of how long I have had this. I...
Last active: Jun 26, 2024
Discussion
CLL patients needing other non related surgeries or procedures
I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?
Last active: Feb 3, 2023
Discussion
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
Discussion
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Last active: Sep 27, 2020
Discussion
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Last active: Feb 3, 2023
Discussion
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21, 2024