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Blood Cancers & Disorders Support Group

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Discussion
Test Results and Prone to CLL based on DNA test
Since 2019 my monocytes have been high 10% on every test from 2019-now On top of that my immature granule gets arr 0.6% which is...
Last active: Jul 23, 2023
Discussion
Does anyone with CLL also have Pyoderma Gangrenosum?
I have had CLL for 14 years. Had an outbreak of Pyoderma Gangrenosum in 2017-18 . It was very difficult to treat using every tool...
Last active: Aug 10, 2024
Discussion
Concerned: CLL in remission, but feel lousy, what to do?
I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...
Last active: Jan 25, 2023
Discussion
CLL Watch and Wait: Can supplements and diet help?
I have been reading studies and have spoken with a Vitamin K expert about vitamin supplements. I am wondering if anyone has taken Lysine, vitamin...
Last active: Jun 8 6:10am
Discussion
Diagnosed with CLL and ITP together! What can I expect?
I was a an active 60 year old man, when routine blood work showed low platelets.... from there, bone marrow biopsy, scans... DVT both legs,...
Last active: Mar 16, 2023
Discussion
CLL treatment that concentrates in shrinking the spleen without undergoing chemo
I have had CLL for 12 years, without need for treatment. Now my spleen has double in size from normal and I would like to...
Last active: Mar 5, 2023
Discussion
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Last active: Sep 27, 2020
Discussion
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Last active: Feb 3, 2023
Discussion
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21, 2024