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Blood Cancers & Disorders Support Group

Public Support Group
654 total results
Discussion
WBC bottomed after first chemo for CLL: Postpone treatment?
Had first chemo (bendamustine) for CLL one month ago. WBC went from 61,000 to 1,500. Doctor wants to move forward with next treatment. WBC has...
Last active: Sep 27, 2020
Discussion
Newly Diagnosed CLL Patients: Do you struggle with symptoms?
Does anyone who has CLL stage 0-1 struggle with symptoms? I should not have symptoms because my blood work only shows, lymphocytes somewhat elevated, 7500,...
Last active: Feb 3, 2023
Discussion
Vitamins and supplements: Have any been helpful for people with CLL?
I am looking for some insight into vitamins and supplements that have been helpful for people with CLL.
Last active: Jan 21 5:15pm
Discussion
Any ideas on how long someone lives with CLL / SLL?
At 66, I was recently diagnosed with CLL / SLL. Since I have few symptoms, they are "watching and waiting" for now and I realize...
Last active: Jan 1 12:13pm
Discussion
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
Several years ago I was diagnosed with CLL with no symptoms and now I’m beginning to feel like I am having a lot of related...
Last active: Apr 15, 2023
Discussion
Does CLL cause minor daily fevers of maybe 1 or 2 degrees?
I was diagnosed with CLL in April 2024 so I have many questions. I have noticed the lymph nodes in my armpits and under my...
Last active: Jun 27 9:23am
Discussion
What are the best treatment for CLL? Is CAR T cell therapy an option?
[July 30, 2021 1:43 P.M.]I don't need treatment right now, fortunately. I've been in remission for over 5 years. Would you say that treatment for...
Last active: Aug 4, 2021
Discussion
Chronic lymphocytic leukemia (CLL): How do you manage side effects?
I have CLL and am having problems with my legs. Numbness and tingling, very weak knees and some pain at times. Acetaminophen takes care of...
Last active: Nov 16, 2022
Discussion
CLL: How do you evaluate well-meaning tips from friends?
Me again.An old friend of mine who is very into holistic therapies and such sent me an article about Rick Simpson Oil. Has anyone heard...
Last active: Mar 23 1:13pm
Discussion
Chronic Lymphocytic Leukemia: Study of green tea extract inconclusive
I just want to tell my story about CLL. I was diagnosed in December 2012 with it and my son found your report on a...
Last active: Aug 18, 2023