CLL diagnosis now having soft tissue pain
I was diagnosed in 2019 with CLL, and was asymptomatic until December 2022 when my lymph nodes started to increase in size.
Since July 2023 I have had increasing soft tissue pain in fingers, hands, shoulders. I also have pain and swelling in ankles, shin and knees.
Both haematology and rheumatology have carried out extensive blood tests and I have also had PET / MRI scans / X-Ray / Ultrasound which ruled out rheumatoid arthritis. Both departments are saying the diagnosis must be from other department! Neither have seen these symptoms before.
Has anyone else experienced these types of symptoms before with a diagnosis of CLL?
Any ideas from the USA are most welcome, as I have drawn a blank in the UK