Blood Cancers & Disorders Support Group

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Comment

My hematologist just prescribed 500 mg of Hydrea every other day for me. My bone marrow...

https://connect.mayoclinic.org/comment/1305749/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 16, 2025

Comment

I have Polycythemia Vera with Jak2 an 76 years old and diagnosed 3 yrs ago. My...

https://connect.mayoclinic.org/comment/1222785/

Discussion: Polycythemia Vera and low iron

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2025

Comment

https://www.mpnresearchfoundation.org/understanding-mpns/ The MPN Reasearch Foundation is a good information resource tostart with. Also try Googling Myeloproliferative...

https://connect.mayoclinic.org/comment/978550/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 11, 2023

Comment

Hello Scott- My oncologist did the bone marrow procedure 3 years ago and confirmed the cause...

https://connect.mayoclinic.org/comment/652292/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2021

Comment

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I forgot to mention that my Bone Marrow did show JAK2 mutation back in 2015. I...

https://connect.mayoclinic.org/comment/203953/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2019

Comment

I would also be interested in any connection. I have had CLL /SLL for some years,...

https://connect.mayoclinic.org/comment/1386257/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Comment

Yes sorry :( My mom was jak2 positive - high hemoglobin and high hemacrit. The biopsy...

https://connect.mayoclinic.org/comment/1228461/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 3, 2025

Comment

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Comment

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow...

https://connect.mayoclinic.org/comment/894762/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023