Blood Cancers & Disorders Support Group

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Comment

Did you have a bone marrow test? I chose not to. My oncologist/ hematologist said PV...

https://connect.mayoclinic.org/comment/1163289/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 27, 2024

Comment

My official PV diagnosis came after blood tests confirmed by positive JAK2 result.. No bone marrow...

https://connect.mayoclinic.org/comment/894762/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2023

Comment

Does have tested positive for JAK2 mutation mean you have a MPN? Very confused. I was...

https://connect.mayoclinic.org/comment/763106/

Discussion: Polycythemia: Are you asymptomatic?

Support Group: Blood Cancers & Disorders

Posted: Oct 19, 2022

Comment

Hello, I didn’t start on HD until mine hit 842. After 3 months I’m down to...

https://connect.mayoclinic.org/comment/1026054/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

I have seen two hematologists, both very good with evaluating and treating the ET, but have...

https://connect.mayoclinic.org/comment/831683/

Discussion: Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta

Support Group: Blood Cancers & Disorders

Posted: Mar 25, 2023

Comment

I can understand the 2 words cancer and chemo are extremely scary. But with ET Jak2,...

https://connect.mayoclinic.org/comment/1091505/

Discussion: I have ET a blood Cancer and I need advice.. Terry

Support Group: Blood Cancers & Disorders

Posted: Jun 22, 2024

Comment

I, too, am interested in what feedback others have. My platelets are in the 500s and...

https://connect.mayoclinic.org/comment/941103/

Discussion: Worried about slightly elevated platelet count

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I forgot to mention that my Bone Marrow did show JAK2 mutation back in 2015. I...

https://connect.mayoclinic.org/comment/203953/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2019

Comment

I would also be interested in any connection. I have had CLL /SLL for some years,...

https://connect.mayoclinic.org/comment/1386257/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2025

Comment

Hello. You made me look up Chuvash. Interesting. I have PV/JAK2. So, you write you’ve had...

https://connect.mayoclinic.org/comment/1479523/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 11 10:12am