Blood Cancers & Disorders Support Group

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Comment

I would love to hear more about achy bones. I'm trying to figure out if it's...

https://connect.mayoclinic.org/comment/1235164/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Feb 12 10:28am

Comment

I definitely would ask about this - and ask for this testing if not done. For...

https://connect.mayoclinic.org/comment/1102239/

Discussion: Platelets are too high: What can be done to find root cause?

Support Group: Blood Cancers & Disorders

Posted: Jul 9, 2024

Comment

I am almost 72, with JAK2 diagnosed a year ago, no history of thrombosis. My hematologist/oncologist...

https://connect.mayoclinic.org/comment/1026479/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Comment

I have MDS/MPN with Thrombocytosis which means I have very high platelets (over 1.2 million). I...

https://connect.mayoclinic.org/comment/918100/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 24, 2023

Comment

I’m a 56 yr old female and was just diagnosed with PV in January Jak2 positive....

https://connect.mayoclinic.org/comment/836589/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Comment

Hello sorry for delayed response. I have had PV with JAK2 for almost 5 years. I...

https://connect.mayoclinic.org/comment/788322/

Discussion: Anyone with PV have insensitivity to cold?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

Can someone please tell me the difference between PV & ET? Different symptoms? Can one turn...

https://connect.mayoclinic.org/comment/1066132/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Comment

Did your family doctor do the needle biopsy? I also had a benign goiter and non...

https://connect.mayoclinic.org/comment/878180/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Hi Lisa, my story is very similar to sregiani— ET with Jak2 mutation — Only my...

https://connect.mayoclinic.org/comment/1162618/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

I had seven vaccines in 2021 (3 Covid, 2 Shingrix, flu, Tdap booster. I developed psoriasis...

https://connect.mayoclinic.org/comment/815858/

Discussion: Shingrex and ET platelet levels

Support Group: Blood Cancers & Disorders

Posted: Feb 23, 2023