Blood Cancers & Disorders Support Group

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Comment

I’ve had ET since 2017 as well with similiar levels. I had severe allergic reactions to...

https://connect.mayoclinic.org/comment/1050501/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2024

Comment

Hello ,I wish you a speedy recovery ,my doctor told me that I have PMF but...

https://connect.mayoclinic.org/comment/1044469/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Comment

Bad news last time at the doc office, the doctor told me that I suffer from...

https://connect.mayoclinic.org/comment/1044397/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Apr 2, 2024

Comment

Hello Debbie, Great to hear from you. I made my original post almost a year ago,...

https://connect.mayoclinic.org/comment/998935/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

I did not tolerate Hydroxy and eventually was put on Jakify, which works well. I had...

https://connect.mayoclinic.org/comment/902273/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 26, 2023

Comment

I have been diagnosed with myelo- fibrosis about seven years ago. Before that it was a...

https://connect.mayoclinic.org/comment/50504/

Discussion: Myelofibrosis w/ JAK2 mutation

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2013

Comment

Hi @inevanmac, thanks for answering. Have not had Acupuncture yet but sure hope it works! Never...

https://connect.mayoclinic.org/comment/855064/

Discussion: Does Acupuncture help low back pain caused by multiple myeloma?

Support Group: Blood Cancers & Disorders

Posted: May 5, 2023

Comment

Everyone is different but I went to Rochester MN, Mayo Clinic and after 2 years of...

https://connect.mayoclinic.org/comment/913817/

Discussion: Male 65 year old farmer with thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Comment

I’ve also failed other medications including Anagleride and Interferon (awful drugs!). Hydroxy made me violently ill....

https://connect.mayoclinic.org/comment/908367/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 6, 2023

Comment

Good information! I think I’m sliding down with HU and worried about waiting for a recheck....

https://connect.mayoclinic.org/comment/1350617/

Discussion: Will my Hydroxyurea dose ever be reduced? Does this happen with ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 17, 2025