Blood Cancers & Disorders Support Group

I was diagnosed with CML (chronic myelogenous leukemia) in March 2021. Although I have been taking Sprycel since being diagnosed, my BCR-ABL numbers have plateaued...

Jakafi has really helped with the itchy skin symptom of PV I suffered with, but I've noticed my weight steadily increasing to where I'm the...

I was diagnosed with polycythemia November 23, although it is likely I had it for a significant period prior. I tolerated the hydrea well for...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I have been taking Jakafi for five years with great symptom relief for PV. However I am starting to get a few symptoms again such...

What is the latest information about jajafi and blood clots in treatment of Polycemia Vera?

I have Myelofibrosis diagnosed 8 years ago, and have been diabetic for many years since chemo and radiation for breast cancer. I also have kidney...

I am 74 years old, female. Three years ago diagnosed with PV After five phlebotomies I was told my platelets were too high to continue....

Myelofibrosis. Jakafi Hydrea Enrebic not the answer. Then what is. I am looking for years allready. not using any medicine at this stage

Just wondering with regards medication in 2025 and what is being used to control ET in the modern world? Have done a little research and...