Blood Cancers & Disorders Support Group

My husband has waldenstrom. Since last 3 years he has been on ibrutinib. Recently he developed pleural effusion. Wondering if it is side effect of...

Hi, I’m seeking others who are living with LPL that is not Waldenstroms. (IgG vs IgM) I would appreciate hearing about your experience please. After...

Brukinsa, dexamethosone and infusions of Ruxience, and s octigam twice a month. Straining causing bleeding. Only thing that helps is enemy but makes me sweating...

Just receives referral for palliative care In mail. Concerned Because it Was Never discussed with oncologist for My Waldenstroms. I see him on June 30th....

My eye cataracts Have gotten very bad since on infusions, Brukinsa and dexamethosone for Waldenstroms. Ophthalmologist said I need the surgery but can’t do it...

Over a year with Waldenstroms diagnosis. They now think I’ve had it much longer On Ruxience, prednisone and Imbruvica. Igm coming down too slowly but...

Just wondering! Yes I’m the lucky one in that charming situation. Unable to get the MMR vaccine because it’s live attenuated and unsafe. I have...

My daughter has Waldenstrom and going through a new infusion treatment. Recently she came down with a head cold and she took a covid test...

Hi, I’m 43 years old, male, and was just diagnosed via bone biopsy for nhl, with the differential lpl/mzl. From what i understand this is...