Blood Cancers & Disorders Support Group

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Comment

I’m not sure if you’ve been to this site or not but there’s some good information...

https://connect.mayoclinic.org/comment/863823/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 21, 2023

Comment

Welcome, Beverly. Being told you have lymphoma and the treatment is watch and wait can be...

https://connect.mayoclinic.org/comment/680909/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2022

Comment

@becky1024 I have been on low dose chemo since last August. The low dose is because...

https://connect.mayoclinic.org/comment/731696/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Jul 28, 2022

Comment

Hello @mike02041950 @barbdk @lesliemont. Because WM is a type of blood cancer where your bone marrow...

https://connect.mayoclinic.org/comment/922967/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 2, 2023

Comment

Hello 1oldsoul and thanks for the response. You asked about the determining factor from my biopsy...

https://connect.mayoclinic.org/comment/923949/

Discussion: Should Waldentrom's Patients Get Flu Shots?

Support Group: Blood Cancers & Disorders

Posted: Sep 4, 2023

Comment

@deljr Welcome to Mayo Clinic Connect! I'm glad you found us; by the way, how did...

https://connect.mayoclinic.org/comment/661787/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2021

Comment

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

Comment

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Comment

@carrnv42, welcome. I moved your question about zanubrutinib (Brukinsa) to this already existing discussion: - Waldenström...

https://connect.mayoclinic.org/comment/1451014/

Discussion: Waldenström macroglobulinemia (WM): Anyone on zanubrutinib (Brukinsa)?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2025

Comment

@loribmt also in googling my blood test results showed probability dx of either Waldenström macroglobulinemia (WM)...

https://connect.mayoclinic.org/comment/1435921/

Discussion: Bone marrow biopsy and/or blood tests for MGUS

Support Group: Blood Cancers & Disorders

Posted: Nov 11, 2025