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Blood Cancers & Disorders Support Group

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Discussion
Treatment for CLL: Any experiences with Brukinsa (zanobrutinib)?
Started therapy for CLL after 2.5 years of wait and watch with my excellent doctor at Mayo and local haematologist.This was predicted based on prognostic...
Last active: Aug 8 10:16am
Discussion
CLL complicated by autoimmune hemolytic anemia (AIHA)
Anyone dealing with AIHA? I’ve had 4 infusions of rituxan. Got hemoglobin to 12, but other markers of hemolysis still off. What next? Geri
Last active: May 25, 2023
Discussion
Have Bullous Pemphigoid and now diagnosed with CLL
I have Bullous Pemphigoid and have been diagnosed with CLL. I was wondering if that has happened to anyone else.
Support Group: Autoimmune Diseases
Last active: Jun 7, 2024
Discussion
CLL leukemia: Just diagnosed, what can be done?
Husband 84 just diagnosed with CLL, Is this common in older people and what things are done to stop from progressing?? We are new to...
Last active: Jul 20, 2024
Discussion
CLL diagnosis now having soft tissue pain
I was diagnosed in 2019 with CLL, and was asymptomatic until December 2022 when my lymph nodes started to increase in size. Since July 2023...
Last active: Nov 22, 2023
Discussion
Newly diagnosed CLL How to interpret FISH results?
I just got back the FISH results and trying to understand what it means. "Results: abnormal." "INTERPRETATION: This analysis showed signal patterns consistent with trisomy...
Last active: Jan 9 8:43am
Discussion
Test Results and Prone to CLL based on DNA test
Since 2019 my monocytes have been high 10% on every test from 2019-now On top of that my immature granule gets arr 0.6% which is...
Last active: Jul 23, 2023
Discussion
Does anyone with CLL also have Pyoderma Gangrenosum?
I have had CLL for 14 years. Had an outbreak of Pyoderma Gangrenosum in 2017-18 . It was very difficult to treat using every tool...
Last active: Aug 10, 2024
Discussion
Dual Diagnosis of CLL and Acute Epstein Barr Virus
I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...
Last active: Oct 22, 2021
Discussion
CLL: Chemotherapy and its affect on my immune system
Hi, My name is Mary and I am 59 years old, I was diagnosed with Chronic lymphocytic Leukemia nine years ago. since then I have...
Last active: May 29, 2018