Support Groups

Blood Cancers & Disorders Support Group

Public Support Group
653 total results
Discussion
Concerned: CLL in remission, but feel lousy, what to do?
I was diagnosed with CLL in 2017, i’m on Imbruica. I was at my doctor inDecember. My Dr. Told me i was in the beginning...
Last active: Jan 25, 2023
Discussion
Had CLL for about 2 years, Dr is now thinking of treatment
I was diagnosed August of 2021 with CLL, IGHV mutated, 13q14 deletion, no other chromosomal abnormalities. I'm now 64, female. I had an enlarged lymph...
Last active: Aug 9, 2023
Discussion
With CLL what to do about night sweats and dry mouth?
I am not getting treatment. Its "wait and watch." What can I do about the nightly sweats? Thanks
Last active: 3 days ago
Discussion
Dual Diagnosis of CLL and Acute Epstein Barr Virus
I am three years into a dual diagnosis of acute Epstein Barr Virus and CLL and I am reaching my wit's end. Looking for help,...
Last active: Oct 22, 2021
Discussion
CLL: Chemotherapy and its affect on my immune system
Hi, My name is Mary and I am 59 years old, I was diagnosed with Chronic lymphocytic Leukemia nine years ago. since then I have...
Last active: May 29, 2018
Discussion
CLL - Blood work Completed IGVA Mutation Analysis
Hi all it is me again. My husbands full blood panel came back and his IGVH Mutation Analysis came back positive. Everything I try to...
Last active: Feb 21 12:10pm
Discussion
CLL patients needing other non related surgeries or procedures
I want to know if it endangers a CLL patient to have other surgeries and medical procedures unrelated to CLL?
Last active: Feb 3, 2023
Discussion
Has anyone else experienced frequent infections and itching with CLL?
I had a respitory infection and took prednisone and Bactrim and started To feel better. Then every time I start feeling better and go out...
Last active: Nov 12, 2023
Discussion
Using pulsating electro-magnetic fields as an adjunct in treating CLL
I currently have unmutated IGHV trisomy 12 with 11q deletion. I was diagnosed in 2012 and have going to Mayo Clinic in Rochester. At the...
Last active: Dec 18, 2018
Discussion
Had CLL since 1996 & Now NETs-Anyone Else?
I have had CLL since 1996 and during the years had oral chemo 3 times to regulate white blood count, but for about 8 years...
Last active: Aug 27, 2023