Blood Cancers & Disorders Support Group

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Comment

I have PV with the JAK22 postive mutation. I Noticed over time that my Hemoglobin and...

https://connect.mayoclinic.org/comment/1402845/

Discussion: I am curious: What symptoms did everyone have in the beginning for PV?

Support Group: Blood Cancers & Disorders

Posted: Sep 27, 2025

Comment

Well Jackie, if you’ve ever read about me and my various post, I must have the...

https://connect.mayoclinic.org/comment/728920/

Discussion: Non Hodgkin's Lymphoma- Watch & Wait Approach

Support Group: Blood Cancers & Disorders

Posted: Jul 20, 2022

Comment

I was diagnosed with Waldenstrom macroglobulinemia July of 2021. I went to the emergency room for...

https://connect.mayoclinic.org/comment/663018/

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Comment

Hi @caregiverx2. I know the stress level is high right now for both you and your...

https://connect.mayoclinic.org/comment/1117361/

Discussion: My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Aug 3, 2024

Comment

Yes Colleen. My hematologist/oncologist, Dr. Monte Martin (associated with Norton Cancer Center,) told me to go...

https://connect.mayoclinic.org/comment/752232/

Discussion: Tasigna side effect? How do I stop an itchy scalp and rash?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2022

Comment

Posted by dmiles @dmiles, I have 9 rare disease (few since birth), I Just have symptoms...

https://connect.mayoclinic.org/comment/802779/

Discussion: Newly Diagnosed CLL Patients: Do you struggle with symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jan 28, 2023

Comment

I am so sorry for all your problems. But don't be devasated. It is a very...

https://connect.mayoclinic.org/comment/74585/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Comment

It took me several days, but finally found good questions for my PV and Myelofibrosis (9...

https://connect.mayoclinic.org/comment/802843/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Jan 28, 2023

Comment

Hi doreen78, First off, no, I have not been told I am in remission from any...

https://connect.mayoclinic.org/comment/1292137/

Discussion: Has anyone told they went into remission without treatment?

Support Group: Blood Cancers & Disorders

Posted: Apr 28, 2025

Comment

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8, 2025