Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,069 total results

Comment

I use aranesp injections when I red blood count goes way low I also have mds-rs-sld...

https://connect.mayoclinic.org/comment/667437/

Discussion: Myelodysplastic Syndrome (MDS): how to increase red blood cells?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2022

Comment

Hi Brenda, IPSS-R are the initials for International Prognostic Scoring System - Revised. I know this...

https://connect.mayoclinic.org/comment/962588/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2023

Comment

I have been diagnosed with MDS with platelets running in the low 30 even down to...

https://connect.mayoclinic.org/comment/867472/

Discussion: Immune Thrombocytopenia Purpura (ITP): What helps?

Support Group: Blood Cancers & Disorders

Posted: May 27, 2023

Comment

My husband will be on his 15th cycle on Vidaza . He is 82.5 years old...

https://connect.mayoclinic.org/comment/1398436/

Discussion: How long can we be on azacitidine (Vidaza)?

Support Group: Blood Cancers & Disorders

Posted: Sep 21, 2025

Comment

Since you mentioned ET and the VA in one sentence may I ask if you were...

https://connect.mayoclinic.org/comment/194347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

Comment

Hi Lori and thank you for your reply. I was diagnosed from ITP to MDS maybe...

https://connect.mayoclinic.org/comment/1312711/

Discussion: MDS types: How did you find out what type you have?

Support Group: Blood Cancers & Disorders

Posted: May 25, 2025

Comment

Anne-Marie, thank you for the information on MDS Centers of Excellence. I am fortunate since I...

https://connect.mayoclinic.org/comment/963241/

Discussion: Looking for experiences with the progression of MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2023

Comment

I was diagnosed about 3 months ago with MDS 5Q as well. Tried shots, didn't work,...

https://connect.mayoclinic.org/comment/1259703/

Discussion: Anyone have or heard of MDS with 5q-syndrome?

Support Group: Blood Cancers & Disorders

Posted: Mar 16, 2025

Comment

Hi @fortuitous, There’s another member in Connect (@sherbs)with the same DDX41 mutation only with MDS, not...

https://connect.mayoclinic.org/comment/1188086/

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2024

Comment

I wish I could give you some of my platelets! Mine are running 500 plus up...

https://connect.mayoclinic.org/comment/802496/

Discussion: My platelets are 120000

Support Group: Blood Cancers & Disorders

Posted: Jan 27, 2023